Discover and read the best of Twitter Threads about #cfsme

Most recents (2)

My life in pictures. To all my fellow sufferers of #Fibromyalgia #CFSME I love you, you are not alone. We are not less because our lives have changed. We are not mere shadows of what we once were. We are living proof that we can not only survive what life throws at us, we thrive
Yes we get knocked down, friends abandon us along the way. We are misunderstood, called lazy and more. Yet we know that we endure things others wouldn't dream of. We get back up each and everytime! We have more courage than most will ever know.
This disease does not define us, nor does it shape our future. We will continue to fight back until they find a cause and a cure.
Read 13 tweets
The International Consensus Criteria for ME states: “Misperceptions have arisen because the name ‘CFS’ and its hybrids #MECFS, #CFSME and CFS/CF have been used for widely diverse conditions”. #pwME #MyalgicEncephalomyelitis
@EmergeAus “Our panel strongly recommends that only the name ‘myalgic encephalomyelitis’ be used to identify patients meeting the ICC because a distinctive disease entity should have one name.”
@EmergeAus “Patients diagnosed using broader or other criteria for CFS or its hybrids (Oxford, Reeves, London, Fukuda, CCC, etc.) should be reassessed with the ICC. Those who fulfill the criteria have ME; those who do not would remain in the more encompassing CFS classification.”
Read 19 tweets

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