Discover and read the best of Twitter Threads about #insulin4all

Most recents (16)

My paper on the high cost of prescription drugs and possible solutions is out. I go into how US policies (or lack thereof) affect prices in other countries. #BCJ
#OpenAccess #CostVR #insulin4all @MayoClinic…
There are no easy answers because the factors contributing to high prices are myriad, and come from all different directions. There are factors unique to the US, which are not operational elsewhere. We need many policy changes in order to have an impact.…
Looks like a laundry list of things going on, because a laundry list of things is going on. Everything I mention plays an active role in high prices. We cannot control prices without looking at this 360°

There are things individual docs can do. So don’t wait for policy changes.
Read 4 tweets
My friend Angie Summers of @KYinsulin4all is preparing for the amputation of her remaining leg.

"This is what not having insulin does," she told me. "You can't change the past or its effect on the future."

I am dedicating my work this session to her. #insulin4all
This is the Angie who said that that insulin price hikes were tantamount to "premeditated murder."

This is the Angie who said she had to choose between paying for housing or paying for insulin.

This is the Angie who said the stigma of Type 2 made it hard to ask for help.
But @t1international gave Angie a platform & she spoke out to make things better for Kentuckians.

Now we have to speak out for her. It's time to make things right, Kentucky. I'll see you in Frankfort.

& Angie will be with me whether you see her or not.
Read 3 tweets
Here's my latest* update to my vetted collection of Twitter Disability and Chronic Illness hashtags. Please share it!

Thank you :-) Graffiti background. Foreground in black letters on a  white background to the left reads “Twitter Disability and Chronic Illness Hashtags”<br />
This collection is current as of 01.30.20, previous Twitter update 09.11.19.

There's a PDF version coming up this weekend, to be posted to my Kofi profile. I'll add the link toward the end when it goes up, after the questions, where you can also sign up for email updates.
This version has added

- community suggestions,
- mental health hashtags,
- Medical crowdfunding hashtags,
- and a section for cancer-related hashtags.
Read 84 tweets
@LillyPad CEO David Ricks's open letter blames insulin prices on recent changes the healthcare system. This plainly ignores the CENTURY-LONG abuse of the diabetic community, which is the subject of @DiabetesIncBook.…
To be clear, @LillyPad had malicious intentions from the beginning. The company wasting no time trying to gain a monopoly on newly discovered insulin, at the expense of dying diabetics.…
As early as 1941, @LillyPad, along with Sharpes and Dhome and E. R. Squibb and Sons, was charged with violating anti-trust laws.…
Read 13 tweets
Here’s my latest update to the list of Twitter #Disability & #ChronicIllness Hashtags.

- previous update 02.24.19 -

Please share it! Thank you. :-)

@ImageAltText Graffiti background. Foreground in white letters on a  red background to the left reads “Twitter Disability and Chronic Illness Hashtags”
There will be a PDF version up for download on my Ko-fi, likely tomorrow morning. The link is at the end.
Hashtags For Personal Narratives.

These hashtags are for sharing your stories & experiences. Also good for crowdsourcing solutions.

Read 58 tweets
After 36 years of type 1 diabetes (#T1D), the last year or 2 have been tougher than usual. Patterns shifting bit by bit, my old tricks not working so well anymore, hypo unawareness getting worse, lows coming out of nowhere, increasing fear of travel, fear of driving, less energy.
I started using versions of this slide at the start of my talks earlier this year. The unpredictability had started to bleed into my talks. (“Hey, this isn’t a pager, it’s a medical device. It might beep. I might need to check it. I’m not being rude. I can’t turn it off. Sorry.”) A slide with photos: a small girl colouring, a test tube urine testing book, a woman with a sensor in her arm, a meme with
I developed a new side effect of low blood sugar: deep despair that lingers for hours. It’s about as fun as it sounds, sweeping in for a leisurely stay on the heels of brutally disruptive out-of-nowhere lows. I already hated hypos enough.
Read 25 tweets
NOTE: I will be putting some pictures here illustrating to #insulin4all speech.

If you are attending @MNinsulin4all speech today, follow me & stay tuned here.

If not able to be there, feel free to follow me here for the pics & speech notes afterwards.
IMAGE 1: Shows what happens when our country mobilizes behind a cause. We can make a difference. Since Ryan’s struggles, HIV deaths are down 85% even with infections up 5%.
IMAGE 2: Insulin costs about $6 to manufacture a vial.

It gets sold for $39. In 🇨🇦
And $275. In 🇺🇸
Read 5 tweets
Good Morning from the Banking and Insurance committee where they are discussing insulin affordability and access in Kentucky. People in the crowd are wearing Kentucky #insulin4all shirts.

567,000 adults in Kentucky have diabetes. 108,000 have diabetes but don’t know.
Here’s a breakdown of those numbers
Read 7 tweets
1/ #medtwitter #twitternists #proudtobeGIM

I've been sitting on a @SocietyGIM #sgim19 debrief #medthread since the meeting, and thought I might finally take a swing at it - here goes ..

I am considering whether I can do more division/systems leadership in coming years .. ->
2/ Theme of the conference was 'Courage to Lead', and single best workshop for me was :

Leading Change: Tools/Tips for Change Management

Crediting Alfred Burger, Emily Fondahn, Brent Petty, Nathan Spell, Dan Steinberg - can't find them on Twitter, so giving proper 🗣🗣.
3/ would like to share key concepts for all of us trying to lead in academic medicine or in #advocacy spaces.

First key Slide/thoughts:

The hard stuff - barriers to change .. ->
Read 16 tweets
The future of insulin prices in this country, a thread.

More states will pass bills like Colorado's where the price IS NOT CAPPED but insurers will absorb cost difference so that co-pay relief will happen for those on private insurance.
We'll get to a critical mass like with the Affordable Care Act where, yes, not everyone is impacted by these co-pay relief bills but it's enough relief for most people.
Meanwhile, because we haven't actually addressed the price or taken power away from the pharmaceutical companies (or any other players in this game), the PRICE of insulin will continue to rise.
Read 13 tweets
I was recently asked 'how is the non-communicable disease #NCDs agenda going to ever get the same sort of money #HIVs did to achieve change?' I thought it was a very interesting question. Here are my thoughts, feel free to add/chime in/disagree #globalhealth #insulin4all 1/12
Everyone is trying to duplicate the #HIV movement without *actually* duplicating it. The sanitized history is that Bill Gates +Clinton + Bono got together and made HIV meds cheap. The real history is completely different cc @jamie_love @gregggonsalves… 2/12
It was *patient* activism that turned the tide. It was groups like @actupny in the US or Treatment Action Campaign in South Africa, groups that could shut down the FDA or raise 10,000 people to march in Cape Town. It was not celebrity or academics 3/12
Read 12 tweets
Drug prices are in the news. A thread. @RepCummings said it best "There is a strong bipartisan consensus that we must do something to rein in out-of-control price increases"… ....1
Similarly, GOP Chairman @ChuckGrassley said "“I have heard stories about people reducing their life-saving medicines, like insulin, to save money. This is unacceptable and I intend to specifically get to the bottom of the insulin price increase.”… ...2
This is a BIG deal. Patients have been boldly telling their stories in an attempt to force change. They are fighting MILLIONS of lobbying dollars to protect the status quo. MILLIONS...3…
Read 8 tweets
Covert Patent Evergreening: How Pharma can effectively make patents last forever. Read on.

This form of patent evergreening is the most effective & enduring modus operandi. Best example of this is Insulin. #Insulin4All
@DavidP4AD @aholdenj

Here is how it works. 1/ 👇
1923 Insulin first patented
1946 Improved NPH patented
1950s Improved Lente versions patented
1970s Improved pure insulin patented
1980s Recombinant Human insulin patented
1990s Analog insulin patented
2000s Long Acting analog insulin patented

@Jandelliott #Insulin4All 2/
Although each improvement took a lot of money, scientific research & regulatory studies, & vastly improved life & quality of life: They effectively made insulin a NEW drug over and over again prolonging the patent life from 1923-Present

@SarahKarlin @GilmerHealthLaw
@mtmdphd 3/
Read 10 tweets
Small rant time. Being a type 1 diabetic is not something that I could have prevented. It is not something that will go away. I am stuck with it. My body does not make the insulin that i need to survive. Therefore I must purchase it. Must. There is no other way for me to live.
This is not an option for me. The prices of these insulin that I require have increased to outrageous levels. $550 for on of my monthly scripts and $340 for the other, not including my premium and other miscellaneous Healthcare goods.
I work two jobs; I have for the past year and a half. I work seven days a week. My rent is always paid, somehow I am able to get the insulin I need. It has been an ongoing and frustrating struggle. People I've mentioned this to just don't seem to comprehend.
Read 7 tweets
Screenshot of an ad in a running app today after I finished running. Translated, it says: “Eli Lilly, insulin producer since 1923.” You should add to it, @LillyPad: “Extracting as much $ as we can from people who couldn’t live 3 days without it since about 2000.” #Insulin4all An ad in French with two white rabbits and text on an orange flag.A graph titled « rising insulin prices » showing humalog and novolog going up in price in lockstep over 20 years
For those who are unfamiliar with this issue:
1. There have been no improvements to the insulin in that time.
2. There is no generic.
3. It is only in the US that the price has gone up like this. Exact same insulin costs a fraction in other countries (e.g., 1/10th in Canada.)
4. Type 1 diabetes (used to be called “juvenile diabetes”) is an autoimmune condition. It accounts for about 5-10% cases of diabetes. Those of with it cannot survive without injected insulin.
5. People with type 2 diabetes (90-95% cases of diabetes) may also need to take insulin.
Read 3 tweets
So many #insulin4all posts involve heartbreaking stories of rationing and struggle to just stay alive. It is important for us to hear this, but it's more important for those of us with privilege and fridges full of insulin to speak out. It could so easily be us. 1/
To put the burden on people who are fighting for their very existence is the essence of privilege. Those of us with good insurance and good jobs have a duty to fight for those who don't. The price of insulin is an insane example of the broken American healthcare system. 2/
Though I worry about my daughter's future, I also know how blessed we are right now. Though it is a financial burden to pay for all that's required to keep her safe, our reality is that we are fine. We have everything we need and more. She is thriving and well-cared for. 3/
Read 8 tweets

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