Discover and read the best of Twitter Threads about #insulin4all

Most recents (11)

Good Morning from the Banking and Insurance committee where they are discussing insulin affordability and access in Kentucky. People in the crowd are wearing Kentucky #insulin4all shirts.

@SpectrumNews1KY
567,000 adults in Kentucky have diabetes. 108,000 have diabetes but don’t know.
Here’s a breakdown of those numbers
Read 7 tweets
I haven't put what I do or areas of advocacy work I do in my bio because there are so many issues that wouldn't fit. But I feel I need to change it so that people understand that I've been working in advocacy for a long time and on many issues. Not sure how though.
First, by the rules for attorneys in Texas (where I've been in good standing for over a decade), I cannot say that I am an expert in anything or that I specialize in anything. They're inane rules, but I must follow them.
Here's a little jaunt through my resume starting with some of the most recent work I've done.

My most important endeavor in the last few years has been working on the insulin pricing crisis and addressing drug pricing and the pharmaceutical industry. healthasahumanright.wordpress.com/2017/05/16/the… 1/
Read 27 tweets
1/ #medtwitter #twitternists #proudtobeGIM

I've been sitting on a @SocietyGIM #sgim19 debrief #medthread since the meeting, and thought I might finally take a swing at it - here goes ..

I am considering whether I can do more division/systems leadership in coming years .. ->
2/ Theme of the conference was 'Courage to Lead', and single best workshop for me was :

Leading Change: Tools/Tips for Change Management

Crediting Alfred Burger, Emily Fondahn, Brent Petty, Nathan Spell, Dan Steinberg - can't find them on Twitter, so giving proper 🗣🗣.
3/ would like to share key concepts for all of us trying to lead in academic medicine or in #advocacy spaces.

First key Slide/thoughts:

The hard stuff - barriers to change .. ->
Read 16 tweets
The future of insulin prices in this country, a thread.

More states will pass bills like Colorado's where the price IS NOT CAPPED but insurers will absorb cost difference so that co-pay relief will happen for those on private insurance.
We'll get to a critical mass like with the Affordable Care Act where, yes, not everyone is impacted by these co-pay relief bills but it's enough relief for most people.
Meanwhile, because we haven't actually addressed the price or taken power away from the pharmaceutical companies (or any other players in this game), the PRICE of insulin will continue to rise.
Read 13 tweets
I was recently asked 'how is the non-communicable disease #NCDs agenda going to ever get the same sort of money #HIVs did to achieve change?' I thought it was a very interesting question. Here are my thoughts, feel free to add/chime in/disagree #globalhealth #insulin4all 1/12
Everyone is trying to duplicate the #HIV movement without *actually* duplicating it. The sanitized history is that Bill Gates +Clinton + Bono got together and made HIV meds cheap. The real history is completely different cc @jamie_love @gregggonsalves theguardian.com/society/2016/j… 2/12
It was *patient* activism that turned the tide. It was groups like @actupny in the US or Treatment Action Campaign in South Africa, groups that could shut down the FDA or raise 10,000 people to march in Cape Town. It was not celebrity or academics 3/12
Read 12 tweets
Drug prices are in the news. A thread. @RepCummings said it best "There is a strong bipartisan consensus that we must do something to rein in out-of-control price increases" nytimes.com/2019/01/29/us/… ....1
Similarly, GOP Chairman @ChuckGrassley said "“I have heard stories about people reducing their life-saving medicines, like insulin, to save money. This is unacceptable and I intend to specifically get to the bottom of the insulin price increase.” seattletimes.com/business/insul… ...2
This is a BIG deal. Patients have been boldly telling their stories in an attempt to force change. They are fighting MILLIONS of lobbying dollars to protect the status quo. MILLIONS...3 thehill.com/policy/healthc…
Read 8 tweets
Hello yes, another tweet complaining about the broken system the U.S. calls healthcare. I have been without health insurance for 21 months. Sunday I turn 21 and lose all access to healthcare through the Children’s Special Service Act, currently covering people my age with -
Chronic disabilities. As you all know, type one diabetics cannot live without insulin. And I have been denied every application due to a “pre-existing condition” even though I fall under the poverty line, making less than $10k a year.
Tell me how great of a country you think America is if it will let citizens die due to disabilities beyond their control. Tell me you support a nation that will take away healthcare and treat it as a luxury than a right. Tell me why my medication is listed as a luxury and
Read 8 tweets
Covert Patent Evergreening: How Pharma can effectively make patents last forever. Read on.

This form of patent evergreening is the most effective & enduring modus operandi. Best example of this is Insulin. #Insulin4All
@DavidP4AD @aholdenj

Here is how it works. 1/ 👇
1923 Insulin first patented
1946 Improved NPH patented
1950s Improved Lente versions patented
1970s Improved pure insulin patented
1980s Recombinant Human insulin patented
1990s Analog insulin patented
2000s Long Acting analog insulin patented

@Jandelliott #Insulin4All 2/
Although each improvement took a lot of money, scientific research & regulatory studies, & vastly improved life & quality of life: They effectively made insulin a NEW drug over and over again prolonging the patent life from 1923-Present

@SarahKarlin @GilmerHealthLaw
@mtmdphd 3/
Read 10 tweets
Small rant time. Being a type 1 diabetic is not something that I could have prevented. It is not something that will go away. I am stuck with it. My body does not make the insulin that i need to survive. Therefore I must purchase it. Must. There is no other way for me to live.
This is not an option for me. The prices of these insulin that I require have increased to outrageous levels. $550 for on of my monthly scripts and $340 for the other, not including my premium and other miscellaneous Healthcare goods.
I work two jobs; I have for the past year and a half. I work seven days a week. My rent is always paid, somehow I am able to get the insulin I need. It has been an ongoing and frustrating struggle. People I've mentioned this to just don't seem to comprehend.
Read 7 tweets
Screenshot of an ad in a running app today after I finished running. Translated, it says: “Eli Lilly, insulin producer since 1923.” You should add to it, @LillyPad: “Extracting as much $ as we can from people who couldn’t live 3 days without it since about 2000.” #Insulin4all An ad in French with two white rabbits and text on an orange flag.A graph titled « rising insulin prices » showing humalog and novolog going up in price in lockstep over 20 years
For those who are unfamiliar with this issue:
1. There have been no improvements to the insulin in that time.
2. There is no generic.
3. It is only in the US that the price has gone up like this. Exact same insulin costs a fraction in other countries (e.g., 1/10th in Canada.)
4. Type 1 diabetes (used to be called “juvenile diabetes”) is an autoimmune condition. It accounts for about 5-10% cases of diabetes. Those of with it cannot survive without injected insulin.
5. People with type 2 diabetes (90-95% cases of diabetes) may also need to take insulin.
Read 3 tweets
So many #insulin4all posts involve heartbreaking stories of rationing and struggle to just stay alive. It is important for us to hear this, but it's more important for those of us with privilege and fridges full of insulin to speak out. It could so easily be us. 1/
To put the burden on people who are fighting for their very existence is the essence of privilege. Those of us with good insurance and good jobs have a duty to fight for those who don't. The price of insulin is an insane example of the broken American healthcare system. 2/
Though I worry about my daughter's future, I also know how blessed we are right now. Though it is a financial burden to pay for all that's required to keep her safe, our reality is that we are fine. We have everything we need and more. She is thriving and well-cared for. 3/
Read 8 tweets

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