The @icer_review, whose goal is socialized medicine, just published an opinion literally saying that even if the miracle drug, Trikafta, was a cure for #cysticfibrosis (its not but closest we have) that even then it wouldn’t be worth the $$$ to treat my kids. #numbersthatmatter
How dare this unelected agency determine how much money my children’s lives are worth. If Trikafta extends one of my kid’s lives for a SINGLE day, it would be worth it.
This board is modeled after NICE in the UK which hs been denying #cysticfibrosis patients drugs my children in the US have had access to for years. Drugs that are expensive but we know will extend life.
Their clear goal is for the US to adopt socialized medicine. This is an dire warning for every voter. @SenSanders and every Dem running for POTUS has been clear that unelected boards like @icer_review should determine who gets access to life extending meds and who shouldn’t.
