@JeanneMcArdle @jenbrea @Girl_by_the_Aga @DrEReinhold @TheKyrianne @ehlersdanlosuk @GemmaSPearce @BendyBsms @DrEmBurnsEDS @drhannahshort @BluesteinLinda @GrumpyOldDoc @SunilBhanot2 @jvsimmonds01 @vikkhullar1 This is well worth a watch by Prof Rodney Grahame: Prevalence of Hypermobility vimeo.com/79844268
@JeanneMcArdle @jenbrea @Girl_by_the_Aga @DrEReinhold @TheKyrianne @ehlersdanlosuk @GemmaSPearce @BendyBsms @DrEmBurnsEDS @drhannahshort @BluesteinLinda @GrumpyOldDoc @SunilBhanot2 @jvsimmonds01 @vikkhullar1 Prof Grahame tells of the caution that should be exercised in using Beighton score as a clinical tool as it was never meant for that purpose. Hypermobility exists on a spectrum, with fit and healthy at one end and very unwell at the other...
@JeanneMcArdle @jenbrea @Girl_by_the_Aga @DrEReinhold @TheKyrianne @ehlersdanlosuk @GemmaSPearce @BendyBsms @DrEmBurnsEDS @drhannahshort @BluesteinLinda @GrumpyOldDoc @SunilBhanot2 @jvsimmonds01 @vikkhullar1 My hypothesis is that it’s possible for an individual to move back and forth along the spectrum, related to environmental triggers and changes in nutritional status, amongst other things:
@JeanneMcArdle @jenbrea @Girl_by_the_Aga @DrEReinhold @TheKyrianne @ehlersdanlosuk @GemmaSPearce @BendyBsms @DrEmBurnsEDS @drhannahshort @BluesteinLinda @GrumpyOldDoc @SunilBhanot2 @jvsimmonds01 @vikkhullar1 My health status has changed over the years - at different points in my life I may or may not have fulfilled former JHS/EDS-HT and now hEDS diagnostic criteria. My medical history gives me a hEDS diagnosis, but day-to-day, I’m now ‘healthy hypermobile’ surrey.ac.uk/news/personal-…
