What’s going on here? And why it’s key in #COVID19
It’s quite simple: we finally had the #wisdom to ask Mr. D the right question! He and his wife encouraged us to use this picture to teach what we learned.
Mr. D was a pre-#COVID patient. On this day, he was taken off the vent after a MONTH. The incessant mantra had been, “What’s the matter WITH Mr. D?” He was surprised when we asked, “What matters TO you, Mr. D?”
3/ He has a tracheostomy, as you can see. We insert this airway through the neck to improve #comfort when someone is on a vent well beyond 10 days. He’s more comfortable because he no longer has a tube in his mouth. We used a program called the #A2Fbundle to reduce his #delirium.
4/ The “trach” means he can’t run wind over his vocal cords to phonate (later we use a valve that allows him to speak). This doesn’t mean he can’t communicate. He’s a PERSON & I want to know him. Getting his #brain 🧠 to work is key to avoiding the ICU depersonalization chamber.
5/ Everything we do should be directed towards the whole person. #HUMANISM is key in the ICU, and for years I placed technology above humanism, which was flat-out wrong. I thought paternalistically, “I am right, and the patient doesn’t know as much as I do.” Pride. 😤 I am sorry.
6/ Back to this bit about #WISDOM. I’m not saying I’m wise. I’m not. But in this instance our team did find a bit of wisdom. How do I define wisdom?
7/ #Wisdom is being able to figure out how the consequences of my actions in the “now” will play out in the future for me or someone else. It involves me paying extra attention to the present rather than living in the past or the future. For Mr. D, it made a big difference.
7/ On this day, I asked, “What matters most to you?” He wrote down on a pad of paper, “My wife, Wanda, and I want a beer.” That’s what mattered TO him. Because we monitored him with a carefully designed test, we knew he was competent. It was key to respecting his personhood.
8/ You see his wife’s name is tattooed on his fingers, right?
W-A-N-D-A💥
So we got her to his bedside. Their hearts were sewn together, and this was right. Then I handed the #nurses a $10 bill and they said, “Now??” I retorted, “If not now, when?”
9/ Not long afterwards, his amazing #nurse had him sipping this beer with Wanda at his side Precisely what he said mattered the most. They said thanks and “Doc, pay this moment forward to others.” So we took the pic...and I am...to you.
10/ The next day, Mr. D died. Wanda was at his side. #LOVE
Because this lesson on exercising #Wisdom can apply to key decisions I face today: Do I get #Vaccinated or wear a #Mask? Why and why not? These are personal decisions. What matters most TO YOU?
👁 please read last tweet
12/fin
Often, I have not exercised #Wisdom in doctoring my #COVID patients. Today I heard Mr. D whisper, “Dr. Wes, remember the beer! Pay it forward. Someone might benefit.” So here you go: What matters TO your patient? Ask the question & ACT on the answer.
1/🧵 AGEISM: Never be discouraged by age AND don’t judge others by age. Chronological age is a bogus constraint in life. I read today of some great examples of iconic people who did crazy cool things after 7 decades of life. See these & realize age is NOT a limitation... #MedEd
3/ Bonus 😀: German athlete Johanna Quaas at 86 y/o is the world’s oldest gymnast at age 86. She’s a retired P.E. teacher & started in this sport at age 56.
Im a doctor who is now spending more & more time daily caring for #LongHaulers (pts w LongCOVID). I just got a TINY dose of what it must feel like to be unheard and unseen…AND I want to apologize to you.
2/ I just keep hearing you say, “Doc, why doesn’t anyone believe me? My friends look at me and think I’m fine, even as I feel further and further adrift. I’m not myself and I can’t tell if I ever will be again. #COVID has ruined my life.”
3/ Yesterday as my plan landed, my phone vibrated. It was the wife of a former ICU #COVID pt, now trached & living on a vent in an LTAC, asking how she can get his new docs to understand & carefully manage her husband’s ongoing #LongCOVID & Post-Intensive Care Syndrome (#PICS).
1/🧵 Imagine 2 people, madly in love & married 28 years, in an impossible situation, both lives on the line & separated by different hospitals. Then imagine 2 sets of #nurses & #doctors separately determined to overcome ⛰ of obstacles…
(shared w perm)
NOTE: the family wants to share their story to offer a glimpse of love ❤️ on all levels
For 3 years, Mark took care of Sharon, his #bride, as she battled breast #cancer. It relentlessly spread to her bones. He never stopped giving.
3/ She could tell he was spent and getting sick himself. “Mark, let’s get you to the doctor!” “Not until you are well, Sharon.” He remained laser focused on her every need. As she became weaker, he took her to get admitted yesterday.
2/ 4-months after #COVID, this @JAMA_current study found 51% of N=478 pts had >=1 #LongCOVID symptom that wasn’t there before. 63% of those w CT scans had lung problems, with 1 in 5 showing scarring. What else?...
3/ This JAMA study also showed this important array of symptoms that essentially constitute #LongCOVID – 31% gross fatigue, 21% cognitive problems, and 23/18/7% anxiety, depression & PTSD. Their outsides look normal, but they aren’t!
This short video from @EricTopol & @Danieloran summarizes key issues about Asymptomatic Spread of #COVID19. Watch & then read the🧵for my unpacking…there is so much at stake!
2/ In 2020, @danieloran & @EricTopol predicted that up to 40-45% of people infected w #COVID19 were totally asymptomatic, meaning HUGE risk of silently spreading the disease to others. 👁 highlights
3/ Now we know ~1 in 3 people infected with #SARSCoV2 remain asymptomatic. This is based on 61 studies & ~1,800,000 pts! Also, of those who test + w/out any symptoms, 75% stay asymptomatic. This poses a HUGE risk of silent spread to high risk patients.
Our patient wants to live 3 days to see his grandson graduate. He has #COVID19 pneumonia & is extremely short of breath. He’s chosen NOT to go on a ventilator & is on 100% O2 HiFlow Canula. He’s afraid of tight-fitting a bipap mask.
2/ The intern said, “I never saw a patient whose respiratory rate was twice his oxygen saturation!” Yep, last night his O2 sats dropped to 30% and he was breathing 60 times a minute! By morning he was 85% sat and RR was 28. Better but tenuous.
3/ All of this raises some complicated ethical + treatment questions that I’d like to cover. We addressed this on rounds several times this week & at times it got a bit heated. His #nurse said she noticed herself flushed, mad, and heart rate >130…why?