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Susannah Fox
@SusannahFox
, 7 tweets, 3 min read Read on Twitter
I was recently asked what trends I pay attention to, what makes me hopeful or despairing about health & tech. Today’s examples…
Hopeful: ONC's Proposed Rule On Information Blocking: The Potential To Accelerate Innovation In Health Care by @SavageLucia healthaffairs.org/do/10.1377/hbl…
Despairing: “This hospital, all the way to the CEO, either did not understand the HIPAA regulations or simply did not want to comply.” - @HealthPrivacy for @ciitizencorp blog.ciitizen.com/blog/2019/2/21…
Hopeful: Teens and young adults are engaging with all kinds of health information resources, from videos to health apps, in an effort improve their physical and emotional wellbeing susannahfox.com/research/digit…
Example: 64% of teens & young adults use a health app; 38% of females between 14-22 years old say they use a period tracking app susannahfox.com/research/diffe…
Despairing: @WSJ testing reveals how Facebook collects a wide range of private data from developers of, for example, period tracking apps wsj.com/articles/you-g…
Hopeful: advocates like @ePatientDave find ways to get the word out from behind the @WSJ pay wall
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Susannah Fox
@SusannahFox
A conference organizer emailed to ask for advice about topics, speakers, and panelists for an event focused on patient-controlled data sharing. Here are some of the ideas I shared (thread)...
The @quantifiedself movement is full of people with ideas about capturing and controlling their own data, then using it to solve problems quantifiedself.com
The @Data4BlackLives community is a creative, critical group of engaged scientists, technologists, activists, and organizers around the use & misuse of data d4bl.org/conference.html
Read 7 tweets
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Susannah Fox
@SusannahFox
Nine out of ten U.S. teens & young adults with moderate to severe depressive symptoms say they have gone online for information on mental health issues (compared to 48% of those without depressive symptoms) bit.ly/2DEqW4G Young people lounge on couches and chairs while looking at their phones and talking with each other.
75% of teens & young adults with moderate to severe depressive symptoms say they have watched, listened to, or read people sharing about their health experiences online (compared to 54% of those with no depressive symptoms) - @Hopelab @WellBeingTrust study
Half of teens & young adults with moderate to severe depressive symptoms have tried to find people online with similar health concerns (compared to 27% of those who report no depressive symptoms) - @Hopelab @WellBeingTrust #PeerHealthAdvice
Read 4 tweets
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Susannah Fox
@SusannahFox
Checking out @RealTalkAppNC "a community for teens packed with real stories about cringey moments" - example of #PeerHealthAdvice apple.co/2Ca8wIn
More teens use Instagram than Twitter so it's smart that @RealTalkAppNC has a robust presence there: instagram.com/realtalkapp/ #PeerHealthAdvice
Teens are often looking for a "just in time someone like me" to advise them on health and relationship issues susannahfox.com/2014/07/08/jus…
Read 4 tweets

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Arien Malec
@amalec
1/
A mega-meta-thread on Information Blocking threads I've done:

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7 Exceptions to Information Blocking


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Wyatt Wing News ©®™¡!¡?☣♛✞✞✞
@StormShadow_1
💡💡Thread 2: National Enquirer VS Amazon Round 2. ⚡️⚡️

In the previous thread, many questions were posed in regards to Amazon.

Has Amazon been able to utilize it's hosting services to expand it's on ventures?

Let compare some clients & current ventures.
1. Netflix : Founded 1997. The world's leading video rental and streaming provider by 2007 has decided in 2008 that it will begin moving it's data over to Amazon's cloud services after suffering it's own database corruptions & interruptions of service.
2. It sure is a shame that they needed to depend on someone else to host their newfound treasure. As they definitely had started a trend which would impact the world of entertainment like no one ever imagined.
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Matthew Willemsen
@mwill_crypto
0/ We're currently tracking at 40°C (104℉) here in #Melbourne, yet even that pales in comparison to the heat we're seeing in the #crypto/#blockchain space over the past ~24 hours.

What a day! Below are 22 developments that caught my eye.
1/ 🍑 Prominent full-service #blockchain technology co. @BitfuryGroup today announced a #Bitcoin #LightningNetwork-oriented product bundle called @Lightning_Peach.

Consumers, merchants, developers; there's LN-enabled solutions for all! Read more below. medium.com/meetbitfury/bi…
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Julia Serano
@JuliaSerano
was recently asked if I had any writings to explain why Singal's past articles on trans health & children are flawed/biased. in this post, I compile my critiques (+ others) of those articles - specifically, the ones highlighted in the photo: patreon.com/posts/19542136
if you have time for a long-read, and really want to understand the many omissions & mischaracterizations of gender-affirming approaches to #trans #health by Singal et al., this is the piece I'd most recommend: medium.com/@juliaserano/d… #transgender #LGBTQ #children #psychology
...btw I have more in the pipeline. since mainstream media are not inclined to pay writers to pen articles defending gender-affirming approaches these days, I am funding this largely via my Patreon, so please consider supporting me there! patreon.com/juliaserano/ov…
Read 3 tweets
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Michael Samway
@MichaelSamway
THREAD on biz, human rights and tech. 1/ On this 70th anniversary of the UDHR’s adoption by UNGA, connecting dots from UDHR to tech today. UDHR-> ICCPR-> UNGPs-> GNI Principles-> #tech company human rights commitments, infrastructure, and decisions. #UDHR: un.org/en/universal-d…
2/ UDHR is unique in modern int'l political system (post-1648) b/c rights declared inherent in all people based on human dignity, not derived from god, a king or the state. For provisions that we relate to the tech sector today, see Articles 12 (privacy) and 19 (free expression).
3/ In the ICCPR, as one of the UDHR's implementing treaties, see Articles 17 (privacy) and 19 (free expression), which we similarly relate to the tech sector today. #ICCPR: ohchr.org/EN/Professiona…
Read 23 tweets
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Frank Purcell
@FrankPurcell
The U.S. Senate passed a major defense, labor, #health & education funding bill today on a bipartisan 85-7 vote. Pluses in health #research, health #workforce, other initiatives now to reconcile w/House which hasn't moved its bill yet.. /1 @CardinalWaypt senate.gov/legislative/LI…
Can Congress get #health funding done before the new FY19 begins Oct. 1? Maybe. Holdover temporary funding then finish the work in a post-election lame duck session? Depends. /2 @CardinalWaypt
This is more certain: 2019 work for 2020 #health spending will be much more difficult. The new Congress elected this November will get this ticket after the 2yr Bipartisan Budget Act of 2018 $$$ expires,, w/big deficits in view. /3 @CardinalWaypt cbo.gov/publication/53…
Read 5 tweets

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