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I have thought long and hard about #Gadolinium which I have suspected as the source of my pain, joint creaks,skin issues and bewilderment.Powerless Old Disabled Nurse with #MultipleSclerosis And about 9 MRI w Gad.
1st one saw my 5th Cervical Spine lesion. Lit up like an Xmas bulb
1st one saw my 5th Cervical Spine lesion. Lit up like an Xmas bulb
After 12 years of workups for #MultipleSclerosis
3 neurologists, numbness, optic neuritis, spasms, pain, fatigue, I finally had my answer. I could finally start treatment to prevent fading away like I saw so many patients do when I was a Neuro nurse at the Medical Center.
3 neurologists, numbness, optic neuritis, spasms, pain, fatigue, I finally had my answer. I could finally start treatment to prevent fading away like I saw so many patients do when I was a Neuro nurse at the Medical Center.
I had many lesions never explained, for many years. This is the first active one they found. traveloguefortheuniverse.blogspot.com/2009/11/ms-and… I started DMT’s. 3 exacerbations in 12 years. It took Gad to convince Doc to diagnose me. 
Ok, so Without #Gadolinium I might not have been diagnosed with Cervical Spine lesion. I had had a head MRI with Gad and no glowing spots. The Neuro fellow questioned whether my neck had been looked at. Back into the magnet 🧲 Viola, a Diagnosis. Bingo. No Lumbar puncture 👍🏼
I was Relieved to be diagnosed.
I started CombiRx Study with enthusiasm. My Doctors were awesome. I’m not sure how many MRI w Gad I had because study tests are not in my e-chart. I think 7 in 7 years? Looking back, they reassured me #Gadolinium is safe.
I started CombiRx Study with enthusiasm. My Doctors were awesome. I’m not sure how many MRI w Gad I had because study tests are not in my e-chart. I think 7 in 7 years? Looking back, they reassured me #Gadolinium is safe.
After I researched Gadolinium deposition Disease, I suspected I have Gad deposits coming out very slowly. My Doctors are skeptical Of my theory. I have normal kidney function. My tattered fingernails blamed on OCD. I half agree.
Was the testing with Gad worth it?
It depends.
Was the testing with Gad worth it?
It depends.
Without #Gadolinium Neurologists would have to diagnose without using a toxic rare earth metal mined in Mongolia 🇲🇳 Is that too hard to get past?
mmta.co.uk/metals/gd/
mmta.co.uk/metals/gd/
When I had 2 skin biopsies,I now believe I had Gad deposits,I thought they might have seen Gad.My brother said they weren’t looking for it. This was my second biopsy
My first biopsy.
I’m not saying I have Gadolinium Deposits in my skin, slowly coming out over many years.
I am saying that putting it all together makes me suspicious about Gad, and indiscriminate use of Gad, like the frequent scans I had on a study.
I am saying that putting it all together makes me suspicious about Gad, and indiscriminate use of Gad, like the frequent scans I had on a study.
I’m saying it’s time to modify criteria for diagnosis & monitoring #MultipleSclerosis Try a blood test or less invasive testing.I hope @US_FDA takes another look at Safety of Gad.Even a survey could be significant. Gadolinium deposits are Like cancer, 15/10 pain I cannot explain.
@threadreaderapp #unroll please, Friends 🙏🏼😎
