Discover and read the best of Twitter Threads about #lymedisease

Most recents (24)

@bennessb Yes it is. Inaccuracies and flat out lies. As a ChronicLyme/PTLDS patient who's been denied testing, treatment, & support for over 20 yrs this is a painful topic. They are still using the SAME flawed testing that missed my dx in 1993. The ELISA that misses around 50% of cases.
@bennessb I fucking hate the CDC for what they've done to me & my fellow Lyme warriors. Drs run out of business. Some that we travel to see across more than 3 or 5 state lines bc they actually were helping & took insurance. Sorry. I want to burn things down when i think of the yrs stolen.
@bennessb We've been trying to get actual patients & Lyme literate drs on the CDC panel that makes the treating guidelines for over 10 yrs. We still can't be heard. We still can't sit at the table. It's maddening.
Read 27 tweets
More than two decades after assaulting Czech children with lipidated OspA “vaccines,” UConn declares, “It’s the lipids, stupid!”

“Chemical removal of the lipid portion of purified M. pneumoniae lipoproteins eliminated VED...”[vaccine-enhanced disease]

scienmag.com/uconn-research…
WHY do “scientists” still think it’s cool to inject lipoproteins (especially of the highly acylated variety)? WHY is UConn suddenly saying, oh, isn’t it amazing how we solved the mystery of the century! WHY???

Because #LYMErix.
We had a #Whistleblower for that, and she, @KMDickson, got the standard whistleblower treatment so the #pharma criminals wouldn’t have to answer for their crimes. And here we are 20+ years later, with one of the same institutions involved in the OspA scam telling us #lipidsbad 🤬
Read 7 tweets
When will @GovCanHealth update website to acknowledge mom to baby transmission #Lymedisease? Alberta Health does, CDC does, Health Canada officials did in 1988. Why take pause in alerting 🇨🇦 to what has been known + documented since 1985? See thread /1
open.alberta.ca/dataset/58776f…
Is there evidence that Borrelia burgdorferi, the agent of Lyme disease can be transmitted from an infected mother to her baby? YES! Below my 2019 presentation for
@ilads_lyme. Not sure how much more #evidence is needed to acknowledge the risk. /2
Can Borrelia burgdorferi cross the placental barrier + transmitted in-utero? /3
Read 31 tweets
Chronic illness in #LymeDisease is shockingly common. This occurs more frequently if #Lyme is first diagnosed and treated at a later stage, but occurs at every stage of the disease.👇@Lymenews @BayAreaLyme @LymeChallenge @danaparish @ProjectLyme @lymelegacy @LymeOntario
Even for early #Lyme (erythema migrans stage illness), a study by Johns Hopkins demonstrated that about 40% did not get regain their health at 6 months after treatment.👇@LymeAlliance @Lyme_Connection @liv_lyme @UKLyme @AdvocatLyme @LymeDiseaseLDA pubmed.ncbi.nlm.nih.gov/23462300/
A study from Danbury Hospital in CT demonstrated that 61% of patients still had their initial Lyme symptoms 6-12 months after treatment for early Lyme, (erythema migrans stage illness). @LymeDiary @LymeDiseaseAus @LymeAction @LymeDiseaseNYC pubmed.ncbi.nlm.nih.gov/24970880/
Read 14 tweets
If this is actual true, which I find dubious, #IHaveQuestions because we have been down this road before & it is always patients who lose

@Lymenews
@LymeAlliance
@ilads_lyme

#HeLa
#HenriettaLacks

@senblumenthal
@dscc

OneVoice1
🧵
1/x

pharmanewsdaily.com/sorrento-thera…
Let's start with some basic facts:

1. The US Govt (read WE, the US taxpayer) has given Pharma companies like #SorrentoTherapuetics funding & tax breaks to create #COVID19 treatments/vaccines

@RepKatiePorter

sciencemag.org/news/2020/03/m…
2. It's WE, the people, who've donated said antibodies for use in developing treatments/vaccines & the US Govt (Again, WE, the people) has been directly involved in specimen collection

@SenateDems
@SenateGOP
@HouseDemocrats
@HouseGOP
@US_FDA

3/x

redcrossblood.org/donate-blood/d…
Read 25 tweets
@IngrahamAngle I turned the damn thing off. Why are we listening to Fauci when he’s the one who instigated this illness? He violated ethics and took his research to China. HIV is spliced into the damn thing. Why are we pretending this is not the case?
@IngrahamAngle The fox is going to tell us how to save the chickens? Give me a break. This is a charade. Who is big Pharma paying off? We have UV treatment that cleanses the blood and blood banks. We have to assume everyone is going to get sick and we have to be prepared to treat people.
@IngrahamAngle The testing is being instituted by the Clinton foundation? How political is that? Testing is a sham. We cannot control the false positives. And guess what? Fauci knows that because he faked the NIH Lyme guidelines to profit. He thinks he’s smarter than everyone.
#Lymedisease
Read 13 tweets
Save this CDC link. Very difficult to find on CDC's website, intentionally buried.
cdc.gov/nchs/data/heal…

Great info for friends and family.
Proof Corona is big hoax.

BUSTED!!
CDC revises 55K alleged COVID deaths to flu & pneumonia. H/T @CameraPhyllis

#COVIDistheflu #CDC_LIES
#Q4040 lol, I should check Q when I get back on the computer. Now it's a Q drop.

cdc.gov/nchs/data/heal…📁
>11,356 COVID-19
>54,217 Pneumonia, Influenza, OR COVID-19
Influenza death rate low v previous years?
Knowledge is power.
Information warfare.
Q

#CDC_Lies #Covidistheflu Image
Can't wait to share w/parents; put their fears at ease.

2½ yrs since I've seen them.
3½ yrs since I've seen my son.
I left America in 2017 to stay alive.
People didn't believe DeepState was real.

My how things have changed!
#GreatAwakening
#Q4041
#CDC

qanon.pub/data/media/0cf… Image
Read 32 tweets
6 months ago how many of you had heard of #Hydroxychloroquine?
Well I knew about it
Here's my story as I support @realDonaldTrump and his push for the use of this drug to treat #COVID19
I was DX with Chronic Late Stage #LymeDisease around 2014. I've probably had it my entire life. It lies dormant in your body for many years waiting to rear its ugly head.
upi.com/Archives/1990/…
9 yrs ago it activated in me.
Like many Lymies I struggled getting my Dr to believe me and this complicated disease. He refused to listen, denied the existence of it and eventually kicked me out of his practice of which I had been a patient 14ish yrs
The mockery of patients is real.
Read 17 tweets
#Qanon post 3954 - Q shares a meme with various establishment Dems and their ties to #MSM. Q says there’s 29 national connections not listed & 98 local connections. Well, we know #AndersonCooper is #GloriaVanderbilt’s son & #MikaBrzezinski is the daughter of #ZbigniewBrzezinski.
#Qanon post 3955: tags a #Trump meme of him as #Rocky during a training montage. Too good!
#Qanon post 3956: Q tags an Anon who brought up the fishiness surrounding #LymeDisease along with an old post saying cures already exist. Q is saying #hydroxychroloquine+ will cure other diseases such as Lyme’s disease kept in the dark for $$$. What else?
Read 3 tweets
1. thread: #coronavirus and #MECFS

We know that #MECFS can be triggered by a range of viral pathogens

So it is likely that #coronavirus could trigger a worldwide spike in ME/CFS in the next 6-18 months

@bmj_latest
bmj.com/content/333/75…
2. Post-infection #MECFS has been reported following infection from brucellosis, #EBV (mononucleosis), #LymeDisease, Q-fever, Ross River virus, viral meningitis, dengue fever and...

sciencedirect.com/science/articl…
bmj.com/content/333/75…
3. ...an increased risk of developing #MECFS has already been associated with a previous viral #pandemic

This study found that young/healthy people were just as likely as the elderly to develop #MyalgicE following in an #influenza pandemic

#coronavirus
sciencedirect.com/science/articl…
Read 8 tweets
Bill Gates: Coronavirus may be ‘once-in-a-century pathogen we’ve been worried about’
👉Instill fear to roll out #Vaccines
👉Robert F. Kennedy Jr. Compared Vaccines to a Holocaust
#CoronaOutbreak #mondaythoughts
Deadly Secrets of Plum Island #LymeDisease
Under Project Paperclip the U.S. brought SS Nazi Erich Traub to run BioW labs. Plum Island (Lab 257) was where they weaponized tics. Many w/ Lyme maybe dx w/ CFS, Fibro, Mono, ME/CFIDS, MS,etc #CoronaOutbreak
👉youtube.com/watch?v=VT6gCq…
Lessons From Lyme Disease: Six Reasons The CDC’s COVID-19 Failure Was Predictable #LymeDisease #COVID19
👉A 17-year-old boy who had tested negative, went untreated & died after Lyme infected his heart
CDC denies Lyme/ME/CFS/GWF #CrimesAgainstHumanity
forbes.com/sites/marybeth…
Read 24 tweets
One of my greatest heroes! Dr. Judy Mikovits PHD Fired & Jailed for proving the Link Between Retroviruses & Chronic Diseases: ME/CFS/CFIDS/Lyme-XMRV retrovirus
RedCross refused to test for XMRV!
Patients are suffering & dying in silence
youtube.com/watch?v=CqdLft…
#SundayMorning
We already have an epidemic in the U.S. only you will not see patients because they are too ill to fight or engage in normal activities!
People with Lyme, ME/CFS, CFIDS +other diseases are really suffering from infections diseases/XMRV
The CDC knows #SundayThoughts #coronarvirus
The Tuskegee Syphilis Experiment
They wanted to see how black men they would die, treatment included Arsenic/Mercury
1/3/2019 U.S. Judge stated Johns Hopkins,Bristol-Myers& Rockefeller Found. face a $1B lawsuit for their roles affecting Guatemalans
Margaret Sanger’s Eugenic Plan
Read 27 tweets
Ever shattered an orange using liquid nitrogen? That's how we get DNA out of ticks in our new @FrontiersIn article frontiersin.org/articles/10.33… @UMassMedical @broadinstitute @karlssonlab
We have a lot of ticks. 1000s & 1000s of ticks. People send them to us as part of our #citizenScience #tick disease study ProjectAcari.org. The problem? getting the DNA out.
We want to use high-throughput #DNA sequencing to find out everything we can about each individual #tick - its species, its intestinal #microbiome (they have one too!), and if it carries dangerous pathogens.
Read 20 tweets
For the millions of Americans who suffer from Lyme Disease:

newsweek.com/pentagon-weapo…
Does anyone believe the Pentagon will admit if they did release weaponized ticks? #LymeDisease
rollcall.com/news/house-ord…
It was the Pentagon who brought Nazis to the United States and experimented with poison ticks dropped from planes to spread rare diseases.

#LymeDisease

counterpunch.org/2019/08/14/lym…
Read 3 tweets
The origins of Aids: Aids was mad made-Dr. Robert Gallow, Litton
Dr. Horowitz: Emerging Virus & Aids
▪️Who Profits? #BigPharma
▪️All involved w/#AidsFoundations
▪️Epstein, Elton John AIDS Foundation,Bill Gates, ClintonFoundation, McCain
👉
#SundayThoughts
One of my greatest heroes! Dr. Judy Mikovits PHD Fired & Jailed for proving the Link Between Retroviruses & Chronic Diseases: ME/CFS/CFIDS/Lyme-XMRV retrovirus
RedCross refused to test for XMRV!
Patients are suffering & dying in silence

#SundayMorning
We already have an epidemic in the U.S. only you will not see patients because they are too ill to fight or engage in normal activities!
People with Lyme, ME/CFS, CFIDS +other diseases are really suffering from infections diseases/XMRV
The CDC knows #SundayThoughts #coronarvirus
Read 10 tweets
As a journalist that has also had #lymedisease, I can understand why a lot of patients are frustrated with this article.

It spends 95% of its sizeable length fixated on quackery, but not the US health care treatment failures driving desperate patients to these options.
Up to 20% of Lyme patients continue to have symptoms post antibiotic treatment. The US health care system has NO idea why or how to treat them.

That's a 20% treatment failure rate on a raging epidemic driving desperate patients to quackery. THAT is the story.
So many journalists new to #lymedisease see all the desperate patients trying dubious alt-health nonsense, and get oddly and exclusively fixated on that.

But the US health care system is TERRIBLE to these patients. Testing is poor. Misdiagnosis is common.
Read 9 tweets
I was bitten by a #tick in 2011 & it's turned my worle upside down!
I was a practicing trial atty & am now on a walker.
I contracted E. Chaffeensis, Rickettsia of unknown et., & #Lyme.
I wasn't treated for 11 mos. By then, the tick bacteria had invaded my spinal fluid/brain.
Read 12 tweets
76 yr old Mom needs help gofundme.com/76-yr-old-mom-…
Please help us! 😭
Can't afford next mos.' RX @$198/mo necessary to digest/absorb food.
My now 77-year-old Mom is my caregiver. We get $64/mo for food (long gone) + trying to save home.
#Lyme #SaveOurCare
#Fibromyalgia
#IBD
Even $5 or $10 will help + RTs are free. 🙏
I was bitten by a #tick in 2011 & it utterly destroyed my life.
I contracted E. Chaffeensis, Rickettsia, & what was later found to be #Lyme.
I wasn't treated for 11 mos. By then, the bacteria had invaded my spinal cord + brain.
#LymeDisease #healthcare #tick #foodstamps
Read 16 tweets
New article in the Guardian highlights how Lyme can completely destroy one's life. The author got several details about the Lyme vaccine wrong.
In the following thread I will provide some facts:
theguardian.com/science/2019/j…
LYMERix Vaccine Myth: "The data suggests it was highly effective, protecting against the disease in almost 90% of cases."
Fact: The vaccine required 3 doses. It was reported to be 50% effective after the second dose and only 73-78% effective after the third dose.
LYMErix Myth: "The death knell for LYMErix proved to be a theory that the vaccine could induce autoimmune reactions in humans."
Fact: Just prior to FDA approval of LYMErix, Dr. Allen Steere published his research documenting auto-immune responses to OspA cont...
Read 14 tweets
1. This is a very useful thread #MedTwitter because it tracks common reasoning errors that lead doctors to readily accept psychosomatic dx for #MEcfs and other contested conditions like #EhlersDanlos, #mito, #dysautonomia, #LymeDisease, etc.
2. Start with the duty that defines your profession @strauss_matt - to ensure that every patient with a need for med care (medical testing, treatment, or support) receives it when she seeks it from you. Mistaken psychosomatic dx violates that duty in every case where it occurs.
3. No doctor should have to be told to err on the side of medical caution. Your job requires (a) humility about the limits of dx science and (b) historical awareness of immense suffering caused by psychological explanations for #MS #epilepsy #PepticUlcer #Parkinsons #lupus etc.
Read 8 tweets
76 yr old Mom needs help gofundme.com/76-yr-old-mom-…
Please take a moment & read our story. 💔
NEWS!
I just found out that I will be getting $514/mo for SSI but that has to go towards our home & bills/food.
I still need help w/$198/mo RX.
Also received notice that foodstamps will be CUT to $15/MONTH! 😭
Who could possibly eat on 50 cents a day or survive on $17.13/day?
Read 20 tweets
76 yr old Mom needs help gofundme.com/76-yr-old-mom-…
In 2011 I was bitten by a tick. I have a brain tumor/IIH & such severe intestinal damage that I CANNOT digest food w/out enteral food RX. It's $198/wk, even w/pharma discount. My (now) 77-year-old Mom is my caregiver but she can't afford it. Don't have enough to eat/save 🏡. 😭
I contracted E
Chaffeensis, Rickettsia of unknown etiology, & #LymeDisease. I just had 8th spinal tap to relieve pressure on my brain.
I'd been on antibiotics for 19 yrs.
I caught Coxsackie B4 virus-a cousin of polio. Lost most use of (L) side.
I wasn't treated for 11 mos. #Lyme
Read 17 tweets
As those with #lymedisease await IDSA guidelines--the title of this Ioannidis article says it all: "Professional Societies Should Abstain From Authorship of Guidelines and Disease Definition Statements" ahajournals.org/doi/10.1161/CI…
Why you ask? "designated guideline coauthors share in the society-wide power game across a large portfolio of guidelines . . . Tens of thousands of society members then cite these articles. This creates a massive, clan-like, group self-citation network."
Why else? "guidelines . . . promote the careers of specialists, in building recognizable & sustainable hierarchies of clan power, in boosting the impact factors of specialty journals & in elevating the visibility of the sponsoring organizations and their conferences"
Read 8 tweets

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