Discover and read the best of Twitter Threads about #lyme

Most recents (5)

Thread
She takes care of ME-Life sure has a sense of humor.
#MothersDay
My brother we lost in an auto accident at age 19. #MothersDay
My best friend and reason for fighting my illnesses. #MothersDay
Read 25 tweets
Sur Insta, on m'a souvent reprochée d'être virulente contre les médecines alternatives ou les maladies "non reconnues". Je reçois parfois des messages "je sais que t'es contre, mais pour moi ça a marché, alors je partage quand même avec toi" #DONT
Voilà pourquoi ⬇
2010, je viens de me fiancer. Je prépare mon mariage et mon M1 MEFEA (pour prof d'anglais). Ma soeur a toujours eu une santé pourrie. Ma mère a passé sa vie chez les magnétiseurs, rebouteux et autres homéopathes. Culpabilité maternelle oblige face à la santé de son ainée
ma mère cherche depuis toujours "une cause" qui expliquerait pourquoi ma soeur a une santé si défaillante. Et pourquoi elle aussi, au passage, souffre de tant de choses inexpliquées (mon diag subjectif de personnel non médical : trauma psy sur trauma psy ça aide pas à aller bien)
Read 27 tweets
76 yr old Mom needs help gofundme.com/76-yr-old-mom-…
In 2011 I was bitten by a tick. I have a brain tumor/IIH & such severe intestinal damage that I CANNOT digest food w/out enteral food RX. It's $198/wk, even w/pharma discount. My (now) 77-year-old Mom is my caregiver but she can't afford it. Don't have enough to eat/save 🏡. 😭
I contracted E
Chaffeensis, Rickettsia of unknown etiology, & #LymeDisease. I just had 8th spinal tap to relieve pressure on my brain.
I'd been on antibiotics for 19 yrs.
I caught Coxsackie B4 virus-a cousin of polio. Lost most use of (L) side.
I wasn't treated for 11 mos. #Lyme
Read 17 tweets
76 yr old Mom needs help gofundme.com/76-yr-old-mom-…
Please read my mom's gofundme & help in any way possible. We are struggling to survive. RTs help. 😭
In 2011 I was bitten by a tick (after being on antibiotics for 19 yrs). My rescue dog was bitten & died the next day. Wasn't treated for 11 mos- I had E. Chaffeensis, Rickettsia, & prob.#Lyme in spinal fluid & brain. Caught Coxsackie B4, cousin of polio & lost most use of L side.
Read 10 tweets
The heavy-handed (totally out of context) physician commentary on the cases of patients they have never seen or interacted with is so irresponsible. #Afflicted
I have *never* heard of some of the doctors commenting on Jamison's case. This means they don't regularly see ME patients, don't research the disease, and have zero clinical or research expertise. #Afflicted
They filmed at a Stanford symposium that included top researchers from around the world, yet decided to use totally unrelated, nonexpert interviews to comment on Jamison's case in order to convey a POV that fit their narrative. #Afflicted
Read 106 tweets

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