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Thread (3): Data - Ownership, Privacy, Security, etc.
3/



"I Gave a Bounty Hunter $300. Then He Located Our Phone"

"T-Mobile, Sprint, and AT&T are selling access to their customers’ location data, and that data is ending up in the hands of bounty hunters and others not authorized to possess it"
4/



"Accountability in Cyberspace: The Problem of Attribution"

"Identifying the responsible party behind malicious cyber incidents is a necessary prerequisite for holding these actors accountable"

"many challenges that accompany cyber attribution"
5/



"FACEBOOK HIRES UP THREE OF ITS BIGGEST PRIVACY CRITICS"
Emily Dreyfuss

"Facebook's privacy missteps, from the Cambridge Analytica scandal to ... revelation that Facebook has paid people—including minors—to let it spy on all of their online activity"
6/



"Apple’s Empty Grandstanding About Privacy
The company enables the surveillance that supposedly offends its values."

IAN BOGOST
7/



"CVS-Aetna deal with Apple that allows an insurer direct access to you activity and location data"

"digital self-tracking consistent with modernity’s signature strategy of social control as theorized by Michel Foucault: discipline"
8/

buzzfeednews.com/article/salvad…

"One Of The Biggest At-Home DNA Testing Companies Is Working With The FBI"

"the cooperation with Family Tree DNA and the FBI marks the first time a private firm has agreed to voluntarily allow law enforcement access to its database"
9/

100daysinappalachia.com/2019/01/31/a-o…

"Grimes expressed her vehement opposition to giving voter data to President Donald Trump’s voter fraud commission"
"privacy risks were simply too high, she said"

"Grimes’ own staff" looked up "hundreds of voters in the very same registration system"
10/



"GINA, Big Data, and the Future of Employee Privacy"
Bradley A. Areheart & Jessica L. Roberts

"Threats to privacy abound in modern society, but individuals currently enjoy little meaningful legal protection for their privacy interests"
11/



"how repressive governments work"
"Increasingly, the hacking targets personal, not political activity (inevitably kinda public). Activists take political risks for themselves, personal hacking threatens their loved ones more than them"
12/



"Apple and Google accused of helping 'enforce gender apartheid' by hosting Saudi government app that tracks women and stops them leaving the country"
Bill Bostock

"Absher has been downloaded on Android devices more than 1 million times"
13/

Linking to a related "Medical notes, medical record" thread ...


&

wsj.com/articles/new-r…
Two "proposed regulations closely watched by health and technology companies, amid a growing flood of health data that has become an ever-more-valuable asset"
14/

nytimes.com/2019/02/16/hea…

"A Mother Learns the Identity of Her Child’s Grandmother. A Sperm Bank Threatens to Sue"

"business relied on the idea that sperm banks can guarantee anonymity to donors"
"promised that there wouldn’t be any relationship with offspring unless" wanted
15


"After you spit into a tube for a DNA test like 23andMe, experts say you shouldn't assume your data will stay private forever"

"can cancel your credit card"
"can't change your DNA"

"customer downloads" data
"no longer protected by" company's security
16/



"For Your Radar — Huge Implications for Healthcare in Pending Privacy Legislation"
By VINCE KURAITIS and DEVEN McGRAW

"Techlash and Surveillance Capitalism"

"how personal data has been harvested"
17



"With fitness trackers in the workplace, bosses can monitor your every step — and possibly more"
Rowland

"In general, employees in such programs voluntarily sign up"
"lured by cash, reduced premiums, or reimbursements for co-payments and deductibles"
18/



"You Give Apps Sensitive Personal Information. Then They Tell Facebook.

Wall Street Journal testing reveals how the social-media giant collects a wide range of private data from developers; ‘This is a big mess’"

By Sam Schechner
19/



"China Turned to Yale Scientist in Surveillance Campaign"
Redden

"reported that Chinese authorities turned to a Yale University geneticist to help them build a system of genetic surveillance targeting Uighurs, a predominantly Muslim ethnic group"
20/



"Privacy in the age of medical big data"
W. Nicholson Price II & I. Glenn Cohen
"equity, consent, and patient governance in data collection"
"discrimination in data uses"
breaches

"Health Startups Take Down Data Silos That Block AI Adoption"
Gormley
21


"Here are the data brokers quietly buying and selling your personal information"
MELENDEZ & PASTERNACK

"Thanks to a new Vermont law"
"assemble a list of 121 data brokers"
"a rare, rough glimpse"
"operates largely in the shadows"
"often with few rules"
22/


"dissidents at risk"


"For years Facebook claimed"
"adding a phone number for 2FA was only for security. Now it can be searched and there's no way to disable that"
23/



"Disputed N.S.A. Phone Program Is Shut Down, Aide Says"
Charlie Savage

"halting a program that has touched off disputes about privacy and the rule of law since the Sept. 11 attacks"

Security & privacy advocates "gearing up for a legislative battle"
24/



"A New Age of Warfare: How Internet Mercenaries Do Battle for Authoritarian Governments"
Mark Mazzetti, Adam Goldman, Ronen Bergman and Nicole Perlroth

"new era of privatized spying"
"online attacks against adversaries"
"invade your phone"
hacking
25/



"Brooklyn Landlord Wants To Install Facial Recognition Tech At Rent-Stabilized Complex"
BY ELIZABETH KIM

“We don’t want to be tracked"
"We are not animals. This is like tagging us through our faces because they can’t implant us with a chip.”
26/


"pulled into a dragnet from which they can likely never escape (i.e. remove their data). Unchecked DNA swabbing has become a more pernicious version of stop and frisk"

27


"Data Rights and Data Wrongs: Civil Litigation and the New Privacy Norms"
DeMarco & Fox

"no comprehensive data privacy law" in USA
"civil legal doctrines ... ill-suited to the legal questions raised by the rise of the mass collection of personal data"
28

"Mark Zuckerberg: The Internet needs new rules. Let’s start in these four areas"
By Zuckerberg

"need new regulation in four areas: harmful content, election integrity, privacy and data portability"

"European Union’s General Data Protection Regulation"
29/



"HOW CHINA TURNED A CITY INTO A PRISON"
"A surveillance state reaches new heights"

By CHRIS BUCKLEY, PAUL MOZUR and AUSTIN RAMZY
APRIL 4, 2019
NYT
30/



"Tracking your pregnancy on an app may be more public than you think"
Harwell

Ovia "has become a powerful monitoring tool for employers and health insurers, which under the banner of corporate wellness have aggressively pushed to gather more data"
31/



"How The Times Thinks About Privacy"
By A. G. Sulzberger

"The New York Times has reported aggressively on the erosion of digital privacy"

NYT "engaging in the type of collecting, using and sharing of reader data that we sometimes report on"
32/

nytimes.com/2019/04/16/opi…

"Privacy Is Too Big to Understand"
Warzel

Amir Orad - “It’s comparable to asking people to stop using air conditioning because of the ozone layer. It’s not likely to happen because the immediate comfort is more valuable than the long-term fear”
33/

washingtonpost.com/technology/201…

"Alexa has been eavesdropping on you this whole time"
By Geoffrey A. Fowler

"thinks saving recordings is too close to bugging"

"Amazon acknowledges it collects data about third-party devices even when you don’t use Alexa to operate them"
34/

washingtonpost.com/business/2019/…

Diandra "stopped posting to Facebook and closed her LinkedIn account after realizing debt collectors had started monitoring"
"One combed through her LinkedIn page to find a former boss and even family members, who the debt collector then contacted"
35/



"Why Surveillance Is the Climate Change of the Internet
The Atlantic podcast Crazy/Genius returns to explain how privacy became the most important idea on the internet—and why it’s still so confusing."

Derek Thompson
36


"Companies are trafficking in health data w/abandon"


"researchers could solve their access problem by working collaboratively w/people"



"For a Longer, Healthier Life, Share Your Data"
By Luke Miner
NYT
37/

washingtonpost.com/technology/201…

"It’s the middle of the night. Do you know who your iPhone is talking to?"

"Apple says, 'What happens on your iPhone stays on your iPhone.' Our privacy experiment showed 5,400 hidden app trackers guzzled our data — in a single week."
38/



buzzfeednews.com/article/meghar…
"Biometric surveillance systems have swept up the faces, voices, and personal traits of millions of people into government databases in countries across the world with little to no transparency or regulatory oversight"
39/


"chill/police/censor"?
Info "could be used to deny visas to people and speakers whose views and activism the government dislikes. Will this info be shared with abusers of human rights?"


"screenshot of the new visa question"
40/

csindy.com/coloradospring…

"UCCS secretly photographed students to advance facial recognition technology"

"funded by U.S. intelligence and military agencies"

"alarmed privacy experts"

"professors share research with corporate bigwigs and government officials" Seek grants
41


"Privacy’s not an abstraction
An experiment in privacy–and the discussion that ensued–offer unexpected lessons in who gets watched, and how"

"watchful eye whose purpose was not to protect me but to protect others from me and people who looked like me"
42/

nytimes.com/interactive/20…

"'You’re confused into thinking these are there to inform users, as opposed to protect companies,' said Albert Gidari, the consulting director of privacy at the Stanford Center for Internet and Society"
43/





"UnitedHealth Group acquires PatientsLikeMe"
By Laura Lovett and Dave Muoio
44
statnews.com/2019/06/26/pot…

The suit alleges "'records were not sufficiently anonymized and put the patients’ privacy at grave risk.' That’s in part because Google has access to vast and detailed information about consumers"

Hospital “will vigorously defend this action in court”
45/

nytimes.com/2019/06/02/us/…

"The move represents a step up from a September 2017 measure in which the Homeland Security Department proposed and enacted a regulation calling for the surveillance of social media use of all immigrants, including naturalized citizens."
46


"European Privacy Laws May Be Hampering Those Catching Terrorists"
Drozdiak

"privacy advocates in one corner and government and law enforcement officials in the other, butting heads over the appropriate level of access authorities should have to data"
47/



"How to Not Build a Panopticon"

"Corporate surveillance and government surveillance almost always work hand in hand"

NSA programs "tapped U.S. tech companies like Facebook, Google, and Microsoft in order to conduct their dragnet data collection"
48/

wired.com/story/life360-…

"ON TIKTOK, TEENS MEME THE SAFETY APP RUINING THEIR SUMMER"

"Schoenebeck, a professor" concerned with "app’s business model"
Capitalism

"Prospectus claims"
"know where our Users live, work, shop, drive and more”

Using data to "sell car insurance"
49/



"The Algorithmic Colonization of Africa"

Data
Tech companies & governments
“manipulate behavior”
"nudge”

"This discourse of 'mining' people for data is reminiscent of the colonizer attitude that declares humans as raw material free for the taking"
50/



brennancenter.org/analysis/schoo…
School Surveillance Zone
Faiza Patel, Rachel Levinson-Waldman, Jun Lei Lee, Sophia DenUyl
April 30, 2019

"take advantage of schools’ and parents’ fears about the possibility of violence"
51/

nytimes.com/2019/07/23/hea…

Scientists reported in journal "Nature Communications that they had devised a computer algorithm that can identify 99.98 percent of Americans from almost any available data set with as few as 15 attributes, such as gender, ZIP code or marital status"
52/

nature.com/articles/d4158…

"Time to discuss consent in digital-data studies"

"proposals for research involving people"
"guidelines rooted in the 1947 Nuremberg code" &
"1964 Declaration of Helsinki"

"there needs to be an updated set of guidelines fit for the digital age"
53



Alvaro Bedoya Highlights the Critical Connection between Civil Liberties and Civil Rights
SHAHID BUTTAR

Privacy "enables freedom of expression"

Watching/tracking - "those invasions do not affect everyone equally"

Privacy "shield for the vulnerable"
54/


"One exercise of power under the carceral state, is the forcible collection of biological/health-related data"


Language "for recruitment into clinical trials & genetic data collection makes appeals to citizenship & belonging"
55/



"Who has the power to determine what genetic information means & how its used by pharmaceutical corporations & biomedical institutions"
56/

nytimes.com/interactive/20…

"What did we find? The big story is as you’d expect: that everything you do online is logged in obscene detail, that you have no privacy."
57/

buzzfeednews.com/article/hameda…

"The Trump Administration Wants To Start DNA Testing Undocumented Immigrants In Government Custody"

"The DNA results could then be placed into a nationwide database"
58/

nytimes.com/2019/09/06/opi…

"National Digitization Unit"

"data-collection and surveillance capabilities"

"cameras and monitoring devices"
"biometrics for citizens and travelers"
"intelligence software to surveil"

"data mining or A.I."
"can serve to centralize power"
59/

pewinternet.org/2019/09/05/mor…
"More Than Half of U.S. Adults Trust Law Enforcement to Use Facial Recognition Responsibly"

washingtonpost.com/technology/201…
"FBI, ICE find state driver’s license photos are a gold mine for facial-recognition searches"
60/


blog.uta.edu/digitaldialect…

buzzfeednews.com/article/meghar…
"Period Tracker Apps Used By Millions Of Women Are Sharing Incredibly Sensitive Data With Facebook"
By Megha Rajagopalan
61/

insidehighered.com/blogs/just-vis…

"Stop Surveilling Students"
By John Warner

"A recent article by Benjamin Herold at Education Week, 'Schools Are Deploying Massive Digital Surveillance Systems. The Results Are Alarming,' backs up its title."
62/




"BIG NEWS: 9th Circuit holds that scraping a public website likely does not violate the CFAA, even after website owner prohibits with a cease-and-desist letter"

cdn.ca9.uscourts.gov/datastore/opin…
HIQ LABS, INC.
v.
LINKEDIN CORPORATION
63/

propublica.org/article/millio…

"Medical images and health data belonging to millions of Americans ... are sitting unprotected on the internet and available to anyone with basic computer expertise"

"insecure servers"

"It’s not even hacking. It’s walking into an open door"
64/

nytimes.com/2019/09/24/tec…

"Europe’s highest court limited the reach of the landmark online privacy law known as 'right to be forgotten'"

"the European Court of Justice ruled that the privacy rule cannot be applied outside the European Union"
65/

statnews.com/2019/09/20/men…

A study "revealed that 81% of the 36 top-rated mental health apps sent data to Google (GOOGL) and Facebook (FB)"

Assessment of the Data Sharing and Privacy Practices of Smartphone Apps for Depression and Smoking Cessation
By Huckvale, Torous, Larsen
66/



Watching You Watch: The Tracking Ecosystem of Over-the-Top TV Streaming Devices
Moghaddam et al.

Information Exposure From Consumer IoT Devices:
A Multidimensional, Network-Informed Measurement Approach
Ren et al.
67/

washingtonpost.com/technology/201…
"Data firms use your TV history to link up what you watch with what you do on your phone, tablet and laptop — even what you buy in stores"

--------

"IoT Inspector: Crowdsourcing Labeled Network Traffic
from Smart Home Devices at Scale"
Huang et al.
68
vox.com/the-highlight/…

"data privacy landed in the spotlight when Russia-based photo-editing app Faceapp admitted that it was collecting metadata on user photos"
"resulted in Sen. Chuck Schumer (D-NY) calling for an FBI probe, but such practices are common in Silicon Valley"
69/

chronicle.com/article/Studen…

"data on where some of its students spend time on the campus and for how long"
"Degree Analytics"

Student "phone connects to the router in the chemistry building, or the library, or the dorm, it will capture that"
"24 hours a day, seven days a week"
70/



pbs.org/pov/watch/thef…
"The Feeling of Being Watched"
"In the Chicago suburb where journalist Assia Boundaoui grew up, most residents in her Muslim immigrant neighborhood believe they are under surveillance."
"Operation Vulgar Betrayal"
71/

theguardian.com/technology/201…

"In such a world, citizens become ever more visible to their governments, but not the other way around"

"evermore refined surveillance options that enable around-the-clock monitoring of beneficiaries"
72/



"This Little-Known Firm Is Getting Rich Off Your Medical Data"
By Adam Tanner

"You may never have heard of it, but IMS Health knows an awful lot about your medical history."

"IMS sells insights from its ... dossiers mainly to drug companies"
73/

washingtonpost.com/national/healt…

"Do you think you own your own medical data? Your hospital and doctor records, lab and radiology tests, genetic information, even the actual tissue removed during a biopsy or other surgical procedure? Well, you don’t."
74/



"Sidewalk Labs document reveals company’s early vision for data collection, tax powers, criminal justice"
CARDOSO & O’KANE

"Zuboff, the Harvard University professor"
"book The Age of Surveillance Capitalism"
called "document’s revelations 'damning'"
75/

propublica.org/article/border…

"new National Vetting Center"
From "memo that called for the 'Muslim travel ban'"
"faulty gang intelligence"
"patina of accuracy that it may or may not deserve"
"The drive by CBP and ICE to collect large amounts of data"
"analytics-based enforcement"
76/



buzzfeednews.com/article/rosali…
"Amazon, Apple, And Google Are Distributing Products From Companies Building China's Surveillance State"

hrw.org/news/2019/08/1…
"Data Leviathan: China’s Burgeoning Surveillance State"
"social control systems"
77/



washingtonpost.com/technology/201…
"Alex Stamos, the director of the Stanford Internet Observatory and a former chief security officer at Facebook, said there are 'legitimate concerns' about the potential for user censorship and surveillance on TikTok"
78/

theguardian.com/technology/201…

"whistleblower who works in Project Nightingale"
"secret transfer of the personal medical data of up to 50 million Americans"
Patients "kept in the dark"

"full personal details including name and medical history"
"can be accessed by Google staff"
79/

nytimes.com/2018/12/05/ups…

"To Reduce Privacy Risks, the Census Plans to Report Less Accurate Data

Guaranteeing people’s confidentiality has become more of a challenge, but some scholars worry that the new system will impede research."
80/

nytimes.com/interactive/20…

"Short of moving to a mountain hideaway, there is no way to escape tracking altogether, but if you can afford it, you can draw the curtains a bit"

"if privacy becomes an expensive add-on, the rich and the poor will have very different experiences"
81/



"Amazon ready to cash in on free access to NHS data"
Shanti Das & Andrew Gregory
The Sunday Times

"Amazon has been handed the keys to a trove of NHS data it can use to develop products to sell internationally without paying a penny to the UK."
82


Rethinking Patient Data Privacy In The Era Of Digital Health
Bari & O’Neill

"suggest that Congress could enact a package of incremental reforms to ensure the privacy of health data, while broader debates about online consumer data protection continue"
83/

nytimes.com/2019/12/17/tec…

"China is ramping up its ability to spy on its nearly 1.4 billion people to new and disturbing levels, giving the world a blueprint for how to build a digital totalitarian state."
84/

nytimes.com/interactive/20…

"EVERY MINUTE OF EVERY DAY, everywhere on the planet, dozens of companies — largely unregulated, little scrutinized — are logging the movements of tens of millions of people with mobile phones and storing the information in gigantic data files."
85/

washingtonpost.com/technology/201…

"Colleges are turning students’ phones into surveillance machines, tracking the locations of hundreds of thousands"

"'Since students have to download the app, that is considered notification and opting-in,' one UNC official wrote"
86/

vox.com/open-sourced/2…

"People worried about an app based in another country should be worried about pretty much all of the apps they use, after all: Many of them do things like track your location and analyze metadata in your photos."
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