, 14 tweets, 13 min read Read on Twitter
B4 I was bitten by a tick in 2011, I was a practicing trial atty.
I must now use a walker & my 77-year-old mom is my caregiver. She helps me bathe/dress & is my driver.
She can't afford the @$198/mo I need to digest food. We get $15/mo -foodstamps
SOS #help
*$198/mo RX* EnteraGam
It's normally $1600/mo but I get a pharmaceutical scholarship from the manufacturer.
I normally have 2-3 Dr appts/wk. I was just in the hospital AGAIN last month: approx. 8th time, excluding ER visits.
I can't eat w/out this RX.
Please help us 💔 😭 #Lyme
Trying my best to stay upbeat, positive, & RESIST!
I make 5 calls to my MOC every day & use @resistbot.
I can't participate as fully as I would like but I am doing my best.
Please read our story above or on my & my mom's (@DemForLife3) pinned Tweets.
Plz put in any RT rooms. 💔
@resistbot @DemForLife3 This is my mom & I at our local #NoOneIsAboveTheLaw #ProtectMueller rally. She's 77 & I use a walker/cane but nothing could keep us from marching (even if we didn't get far).
I joined Twitter & SM after Charlottesville bc I had to do something. I couldn't let Heather Heyer down.
@resistbot @DemForLife3 I've had 8 spinal taps, next is a brain shunt. I've been hospitalized 8+ times; I've been to The Mayo Clinic where they Dx me w/Coxsackie B4 virus. It's a cousin of polio & I've lost most use of my left side (I'm L handed).
I did PT & aqua therapy for over a yr.w/few results. 😥
@resistbot @DemForLife3 During 1 of my hospitalizations, I caught Vanc-resist. C. Difficile. I fought it for 3.5 yrs but had to get 2 FM transplants to save my intestines & life.
I was on antibiotics for 19 YEARS b4 all of this started w/the tick bite.
@resistbot @DemForLife3 I was bitten by a tick when I ran in the bushes to get my rescue dog Scout, who got loose from her leash.
She died the next day. She had also been bitten even though she had protection.
I caught E. Chaffeensis, Rickettsia, & #Lyme. It moved to my CSF/Brain.
@resistbot @DemForLife3 The Drs are now concerned that the bacteria has moved to my heart valves, causing congestive heart failure/SVT. My legs & feet keep swelling & "weeping".
Please help RT, share to FB, &/or donate.
Even $5 or $10 will help-everything adds up.
401 kind ppl over 7 mos have helped.
@resistbot @DemForLife3 This is from the GI specialist who did my 2 FM transplants, attesting to my need for my RX, EnteraGam.
It's $198/mo, even w/pharmaceutical scholarship. It's normally $1600/mo.
We get $15/mo foodstamps bc they're now giving me $514/mo. (which we have to use to save our home).
@resistbot @DemForLife3 This is from a recent fall in my bathroom. The intracranial pressure continues to build up, causing dizziness, occipital neuralgia, & SEVERE, chronic pain.
This all stems from the tick bite-attendant bacterial infections & Coxsackie B4 virus. I wasn't treated for 11 mos. #Lyme
@resistbot @DemForLife3 Please read our story and find it in your hearts to help.
My story has been vetted by numerous healthcare advocates/writers. Charles Gaba wrote a story about me & Peter Morley took my story to Capitol Hill, & @Alyssa_Milano RTd our story & donated $198.
Please be our voice 💔
@resistbot @DemForLife3 @Alyssa_Milano This is food one of our Twitter family sent us but that's been over a yr ago.
I am on an RX diet called the FODMAP diet (from Stanford).
We just went to a food pantry but I can't eat %90 of the food bc of diet.
We are desperate.
Trying to keep our home.😭
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