I also contacted Coxsackie B4 virus-a cousin of polio. I wasn't treated for 11 mos. I have lost most use of my left side (I'm left- handed)
I never expected a tiny #tick could wreak such havoc. Our worlds have turned upside down.
I can't drive. Mom has to help me bathe /dress. She does:the shopping, laundry, cleaning, cooking, etc
She fell in the driveway and it took us 15 minutes to get her up by myself.
We get $64/mo for food & it's already gone. I don't know what the do. 😭
The food pantry gave us rice, beans, & canned peaches. Nice but
I am on a medically prescribed diet: The FODMAP diet, developed at Stanford.
(Bc of the severe damage to my intestines due to the 3.5 yr battle with Vanc-resistant C. Difficile).
Trying to raise the $198/mo for next mos.' RX, $ for food.
I am in #ChronicPain & my PCP told me I will be for life.
I have had 8 spinal taps bc the #tick bacteria invaded my spinal fluid/brain. The CSF fluid keeps building up & putting pressure on my brain.
I never imagined this would be our lives or my 77-year-old mom's "golden yrs".
I live in Ky: McConnell & Paul are my senators.
McConnell calls himself proudly, #TheGrimReaper
#Trump'sAmerica is killing me slowly.
She shouldn't have to care for her 52-yr-old daughter who was a practicing atty, working at The Center For Women & Children-helping abuse survivors. Mom's an RN-helping ppl until 75-when I got even worse.
Now we need help.
Even if you just read this, hopefully it will raise #LymeAwareness.
I don't know what I will do if Mom passes b4 me. She's 77-years-old & I know she's holding on bc of me.
She worries all the time & cries at night into her pillow when she thinks I can't hear
RTs count & are free.
I appreciate all of my Twitter family who help us.
You are literally saving my life by allowing us to buy my enteral food RX @$198/mo. & allowing mom to buy our food.
#Lyme #IBD #Fibromyalgia #Spoonies 😭