, 16 tweets, 11 min read Read on Twitter
76 yr old Mom needs help gofundme.com/76-yr-old-mom-…
Please help us! 😭
Can't afford next mos.' RX @$198/mo necessary to digest/absorb food.
My now 77-year-old Mom is my caregiver. We get $64/mo for food (long gone) + trying to save home.
#Lyme #SaveOurCare
#Fibromyalgia
#IBD
Even $5 or $10 will help + RTs are free. 🙏
I was bitten by a #tick in 2011 & it utterly destroyed my life.
I contracted E. Chaffeensis, Rickettsia, & what was later found to be #Lyme.
I wasn't treated for 11 mos. By then, the bacteria had invaded my spinal cord + brain.
#LymeDisease #healthcare #tick #foodstamps
👇 During one of my hospitalizations, I contracted Vanc-resistant C. Difficile. I fought it for 3.5 yrs but ultimately had to have 2 fecal matter transplants to save my intestines/life (prevent sepsis).
Now, I can't DIGEST/ABSORB food w/out EnteraGam- an enteral food RX @$198/mo.
My RX is $198/mo. It's normally $1600/mo but I get a pharmaceutical scholarship. My now 77-year-old mom is my caregiver & she can't afford it. It's near the end of the mo & I am freaking out! 😭
Besides my $198/mo RX I need to DIGEST/ ABSORB food, we get $64/mo #foodstamps for food. It's long gone. We had beans, white rice, & canned peaches from the local food pantry but I can't eat any of it!😭
I'm on a medically prescribed FODMAP diet.
Please help us! 💔
Even $5/RT
Please read our story 👆
Anything you can do to help would be so appreciated.
Please RT, share to FB, &/or donate if possible.
Even $5 or $10 will help.
#help #SOS
#Lyme #IBD #Spoonies
#spoonie #Fibromyalgia
#elderlycare
#ChronicPain
I am utterly invisible
My mom & I have worked our entire lives trying to help ppl.
Now we need help.
She's an RN & she worked until she was 75 bc of my med. bills.
I'm a former defense atty & then I worked at The Center For Women & Children: helping abuse survivors. My now 77-year-old mom is exhausted.
The #ACA saved my life! However, by the time it was instated, we had gone through our life savings of $120,000+. We were living off a 2nd mortgage until it was tapped out, then credit cards.
So far in a hole we can't see sunlight.
Please! I need my RX @$198/mo to digest food.
Please! So many of my wonderful friends I've made on Twitter keep me going (besides Mom).
I'm in constant pain & it's so humiliating having to beg for help online.
I now need a walker or a cane.
Mom does everything: helps bathes/dress me; cooks (if we have food), laundry, etc💔
In conclusion, I can't digest food without an enteral food RX that's $198/each mo.
Nearing end of the mo & I don't have it!
We get $64/mo for food (long gone): just my protein drinks are $2/pc. There are many days the pain is so bad, I can only drink them. Still 2-3 Dr appts/wk.
That's me 👇 in yellow. My grade school, high school classmates, & neighbors held a bunco fundraiser for me last summer but the $2000 we raised is long gone.
My RX is $198/mo, foodstamps are $64/mo, & trying to save home.
We've tried to help others our whole lives. Plz help us..
I hope I don't offend anyone but I am so tired.😩
I'm so tired of having to beg for help on Twitter.
I'm so tired of the constant, breathtaking pain.
I'm so tired of seeing my mom trying to hide her worry & her tears.
I'm so tired of worrying Trump/McConnell will take ACA away
We need help!
I'm so tired of those words...
😭
I love you all: each of you who RT, send me funny animal gifs, dms to cheer me up.
I love all of you who donate: enabling my 77-year-old mom to buy EnteraGam; the RX @$198/mo I need. I love all of you who ensure we have food. Plz
Please help us.
3 simple words yet so humiliating to say.
I love her 👇
3 simple words
too inadequate to express how I feel about her.
I love you
3 simple words yet not enough to tell you how much my Twitter family means to me.
Please help us. 💔
3 simple words.
@threadreaderapp Please unroll Thank you 💕 Julie
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