, 15 tweets, 7 min read
A Twitter friend of ours sent us some gluten free food about 2 yrs ago.
My now 78-year-old mom & I get $72/mo for food.
Please help!
A thread explaining my medical situation.
Charles Gaba & Topher Spiro have written articles about us. We are legit.
I have a brain tumor/IIH & such severe intestinal damage that we need $198/mo for the RX that allows me to DIGEST food. 💔
I was a practicing trial atty, when, in 2011 I was bitten by a tick.
I wasn't treated/ diagnosed for 11 mos-despite a trip to the MAYO clinic.
B4 the #ACA, we went through our life savings on my medical care. 😪
I was eventually diagnosed w/E. Chaffeensis, Rickettsia of unknown origin, & #Lyme.
The bacteria went to my spinal cord & brain.
Treatment was too late.
I've had 8 spinal taps so far...
I'm in #ChronicPain
I also caught Coxsackie B4 virus, a cousin of polio.
During one of my hospitalizations, I caught Vanc-resistant C. Difficile. I fought it for 3.5 yrs but had to have 2 FM transplants to save my intestines/ life.
Now, I need EnteraGam to be able to DIGEST food.
It's $198/mo, even w/ pharma discount.
My 78-year-old mom can't afford
Bc of the Coxsackie B4 virus & post viral sydrome + "tick bite" syndrome (#Lyme), I've lost most use of my left side. (I'm left-handed) 😔
I use a wheelchair/walker/cane, depending on my pain & balance.
My now 78-year-old mom loads/unloads my walker. She's exhausted.
She's my best friend and caregiver. She helps me bathe/dress; she cooks, cleans, does the laundry, budgets as best she can.
This is us voting. 👇
It took 2 hrs to get me ready.
I don't know what I will do when she's gone. 💔
We get $72/mo for food.
Please help us!
Here's some proof of my story.
I see my Infectious Disease Dr every 3 mos (since 2012).
I have 2-3 Dr apots/wk + aqua therapy (I've already gone for a yr) & Physical Therapy.
My mom has to drive me to all of them.
Here's 👇 how much we receive for food.
$72/mo for me & my now 78-year-old mom.
It lasts about 2 weeks.
I am on a medically prescribed FODMAP diet.
I can't eat 90% of things at food pantries bc it's all beans & rice.
Please help us! 😭
Peter Morley took my story to Capitol Hill but my senators are McConnell & Rand Paul. 😏
Rand Paul wouldn't even open his office door to Peter who, while being a patient advocate, also has lupus & is a cancer survivor.
Please help! My now 78-year-old mom needs to raise $198/mo for my RX that I need to digest food.
We get $72/mo for food & we need help paying our mortgage. Trying to save our home so I will have a home when she's gone (or vice versa(.
We spent our life savings on my #Healthcare
My now 78-year-old mom & I worked our entire lives trying to help others.
My mom is an RN & worked until age 75.
I was a defense attorney & then worked in family law at The Center For Women And Children: working for abuse victims.
Now, we need help...😭
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