Dec 2nd 2019,
10 tweets,
7 min read
In 2011, I was bitten by a tick. I wasn't treated for 11 mos, despite traveling to the MAYO clinic (which I still owe $9000!)
I contracted E. Chaffeensis, Rickettsia, & #Lyme.
By then, the bacteria had invaded spinal cord & brain. I've had 8 spinal taps to alleviate the pain. 😪
I contracted E. Chaffeensis, Rickettsia, & #Lyme.
By then, the bacteria had invaded spinal cord & brain. I've had 8 spinal taps to alleviate the pain. 😪
During 1 of my many hospitalizations, I caught Vanc-resistant C. Difficile. I fought it for 3.5 yrs but had to have 2 FM transplants to save my intestines & life.
Now, bc of the damage to my intestines, I can't digest/ absorb food w/out RX
@ $198/mo, even w/a manuf. discount. 💔
Now, bc of the damage to my intestines, I can't digest/ absorb food w/out RX
@ $198/mo, even w/a manuf. discount. 💔
My RX I need to be able to digest food is EnteraGam. I take 2/pks a day orally.
It's normally $1600/mo but I get a pharmaceutical discount through the manufacturer, making it $198/mo. My now 78-year-old mom is my caregiver & she can't afford it.
Please help us! 😪
It's normally $1600/mo but I get a pharmaceutical discount through the manufacturer, making it $198/mo. My now 78-year-old mom is my caregiver & she can't afford it.
Please help us! 😪
I also contracted Coxsackie B4 virus-a cousin of polio. Bc I had been on antibiotics for 19 yrs, it was devastating.
I've lost most use of my left side. (I'm left-handed).
My 78-year-old mom loads/unloads my walker, helps bathe/dress me, cooks, cleans, etc.
She's exhausted.
I've lost most use of my left side. (I'm left-handed).
My 78-year-old mom loads/unloads my walker, helps bathe/dress me, cooks, cleans, etc.
She's exhausted.
We get $72/mo for food. A little over $1/day apiece.
I still have 2- 3 Dr appts, aqua therapy, PT each wk.
B4 the ACA, we went through our life savings on my #healthcare.
No one should lose everything bc of a diagnosis or accident. #Lyme #IBD #help
I still have 2- 3 Dr appts, aqua therapy, PT each wk.
B4 the ACA, we went through our life savings on my #healthcare.
No one should lose everything bc of a diagnosis or accident. #Lyme #IBD #help
My now 78-year-old mom, Carolyn, @DemForLife3, is my bff & hero.
She's an RN who worked until she was 75: until I worsened.
I was a trial atty & also worked helping abused women & children.
We've always been the 1s who helped others.
Now, we need help. 😭
She's an RN who worked until she was 75: until I worsened.
I was a trial atty & also worked helping abused women & children.
We've always been the 1s who helped others.
Now, we need help. 😭
Please help if possible- RTs count. Share to FB or any rooms you may be in.
Even $5 or $10 helps.
The GOP governor we voted out just canceled 2 Ky Medicaid providers on his way out the door: incl. mine. 😭
I'm supposed to avoid extra stress bc of my health. (Right 😏)
Even $5 or $10 helps.
The GOP governor we voted out just canceled 2 Ky Medicaid providers on his way out the door: incl. mine. 😭
I'm supposed to avoid extra stress bc of my health. (Right 😏)
Btw, both Charles Gaba & Topher Spiro have written articles about us. Peter Morley took our story to Capitol Hill but Mitch McConnell & Rand Paul are "my" senators.
Paul wouldn't even open his door.
Please help! 💔
Paul wouldn't even open his door.
Please help! 💔
