Thread by @Nofearnofavors4

Many of you know our situation 👇 but today my mom had to use her Target card🎯,(over it's limit), to get a cash advance of $90 to pay for HER meds.
She's on 4 diff.high BP meds.
She's already cut her meds in 1/2 to save $. 😭
McConnell: sign the bill lowering drug costs!!!

https://twitter.com/Nofearnofavors4/status/1193613779176693761

My mom is now 78-year-old yrs old.
She's an RN who worked until she was 75.
She had to quit bc my health continues to decline.
B4 the #ACA, we went through our life savings on my #Healthcare.
We even went to the MAYO clinic (I still owe $9000)
No one should go bankrupt bc health

I was a practicing atty when I was bitten by a #tick.
I worked as a defense atty & then w/abused women & children.
Despite a severe rash, meningitis, & flaccid paralysis, I wasn't treated for 11 mos.
By then, the E. Chaffeensis, Rickettsia, & #Lyme was in my spinal cord & brain.

I have a brain tumor/IIH, lesions on my Pons, scar tissue (sequella) on my left front temporal lobe which makes communication/ memory difficult.
I've had 8 spinal taps & need #9.
1 of my 2 neuros wants to implant a brain shunt but my ID Dr opposes it.
The pain is unbearable.

I also caught Coxsackie B4 virus (a cousin of polio).
It normally only affects infants, but bc I had been on antibiotics for 19 yrs (don't ask 😟😏), it hit me hard due to my severely compromised immune system.
I've lost most use of my left side.
Mom (78 yrs old) is my caregiver.

During 1 of my many hospitalizions, I caught Vancomycin-resistant C. Difficile.
I fought it for 3.5 yrs but had to have 2 FM transplants to save my intestines/life.
Now, I can't DIGEST food, absorb nutrients (bc of all the damage)
w/out RX @$198/mo, even w/pharma scholarship.

Here it is👇.
It's EnteraGam & I can't DIGEST food/absorb nutrients w/out it.
It's norm. $1600/mo but I get a pharmaceutical scholarship, making it $198/mo.
It's Bovine colstrum (yuck!) but absolutely life saving.
@GoodRx even gave me $400 last summer.
Mom can't afford it.😭

@GoodRx Our dog has been out of food for 5 days! 😪
She's on Hills Science (below👇) bc she got into DCon as a puppy & has damaged liver.
We've been giving her chicken but now we're out.
Our cat had a UTI last wk. Visit + RX was $85.
She's on special food 👇 bc of high BP.
Out of her RX.

@GoodRx Mom is 78-year-old now. We get $72/mo for food (a little over $1 a day apiece).
We don't get our #SNAP until the 11th.
As you can imagine, even w/desperate budgeting, $72/mo only lasts about 2 wks.
SNAP doesn't cover toilet paper, paper towels, pet food, cleaners, etc...
#help

@GoodRx Carolyn, my now 78-year-old mom is my caregiver & best friend. She helps me bathe, dress, etc.
She's my driver for all my Dr appts, aqua therapy/ PT...
We are scared & hungry.
Our pets (our babies) don't have their food or RX.
We've maxed out all our credit. 💳 💔 😭
#Lyme #help

@GoodRx

@GoodRx We have 1 roll of paper towels left & 2 rolls of toilet paper. 😳
2 of my Twitter sisters sent some to us a month ago (+ Dawn, Clorox wipes, cat litter...) but now we are out.
They sent me my protein drinks 👇 bc I'm unable to eat sometimes bc of pain.
I'm a fighter/a reSister!

@GoodRx I will #NeverGiveUp!
Charles Gaba, Topher Spiro have written articles about us & @morethanmySLE took my story to Capitol Hill.
gofundme.com/76-yr-old-mom-…

@GoodRx @morethanmySLE We just need help desperately. 😭
Losing our life savings bc of my #healthcare shouldn't be a death sentence, esp. for our dog & cat. 🐶 🐱
We're out of their food & my cat's RX.
Mom can't afford to take her full dose of high blood pressure meds, & we have to raise $198 each mo.

@GoodRx @morethanmySLE This 👇 is me & mom at the "Protect Mueller" rally/Louisville.
We just voted for
@AndyBeshearKY 💪 👊
I'm in #ChronicPain but I do my best to RESIST this admin, while also working to elect Dems across the U.S.
#MoscowMitch needs to pass the bill lowering drug prices.

@GoodRx @morethanmySLE @AndyBeshearKY Please, please help! 💔
RT, share to FB, &/or donate.
Even $5 or $10 will help.
1 of our most expensive bills is Mom's Life Insurance.
She's trying to leave something for me but bc she's 78, they keep raising the price.
This is so embarrassing but I don't know what to do.
😭

@GoodRx @morethanmySLE @AndyBeshearKY @threadreaderapp please unroll. 🙏 💕 Julie

Thank you to everyone helping RT & spreading our story.
Maybe someone who sees this will help.
I'm most worried about Mom & our animals.
I feel like it's my fault for being disabled.
I normally thank everyone separately but today's a rough day painwise.
I love you all! 💕 Julie

@GoodRx (We still have Dawn, dishwasher detergent, & laundry detergent)