The experience of #longcovidkids members is that the activity levels of their children are significant.
Meet Joe
Time difference 10 mins
β He can go to the park.
β He gets palpitations which he's had for 10mths he feels cold on the inside when they happen.
2) We will continue to tell the truth about #covid infection to educated families so that they can make informed decisions.
You can expect to see more stories showing children struggling with their health. This is a fraction of what the children and
3) young people are living with.
So far, everything we have posted, discussed, or raised concern about has been followed up (mths later) with research ...and it is still coming through. We have no reason to lie or exaggerate, our intention remains the
4) same now as they were when we started. To raise awareness, and inform other families so that they have the knowledge we wish we had 18mths ago when our children got #COVID19.
Don't become part of our story #backtoschool#longcovid#backtoschool2021
5) If U have a child recovering from #COVID please follow #cautioustortoise
DO NOT rush them back to school.
Prioritise their recovery over their #education.
Do not succumb to those who want you to doubt your gut instinct. REST is your child's friend. @MEAssociation#mecfs
6) We can expect a #longcovidApocolypse by Christmas.
π±Children who are too weak to sit up unaided.
π±Teens who can't stand to shower.
π±Infants whose knees are too swollen to crawl.
CYP too ill to attend #school
1) π Written by a teenager who has #LongCovid, for a #EHCP application.
What are the child or young personβs views, wishes and feelings about their education? What are their motivators?
"Education is a massive part of anyone's life and because I have been so ill I feel like
2) I have been stripped of qualities and learning that every other child has the right to.
I have spent many months almost a whole year lying in a bed not being able to do anything, not only education but normal teenage activities including meeting friends and living life,
3) not only affects you physically but mentally too.
I see education as the groundwork for someone's life, what prepares them for the future, and being so ill, I feel like Iβm way behind everyone else. Having that extra support would make a huge difference and help prepare me
1) This is Ethan, now aged 15, and ill for 18 months. He would like to be listened to and believed. He is certain that he is not anxious and that he definitely does not have "anything to gain" from debilitating daily symptoms.
2) Anna caught #covid in April 2020, 4 weeks later she had a terrifying "inflammatory response" & was so ill. The hospital refused to see her. She has #covid triggered #CFS & #PANS & been ill since. She's not the same happy, energetic little girl she was. π #AlwaysOurBabies
3) Here is our list - these are the symptoms families report their children and young people had.
And before the trolls their evening #LCK bashing YES we do believe ANY symptom could be #COVID
π¬π§NEW 1) The voices of chronically sick children & young people have been ignored throughout the pandemic.
It is crucial to the development of effective research, innovations, and services that lived experience is #longcovidkids #LISTENtotheKIDS researchsquare.com/article/rs-798β¦
2) represented. The findings of this study evidence that prevention MUST be our focus as kids go #BackToSchool
3) LCK represents families around the world who are living with #kids who are chronically and significantly affected from #COVID19 wave 1/2/3. Many of whom are not recovering, this needs your attention.
We can only conclude that anyone who continues to minimise #longcovid in
β a loss or change to a sense of smell or taste β this means they cannot smell or taste anything, or things smell or taste different to normal more coughing episodes in 24 hours
We have been asking the #NHS to update this list since
3) LCK started.
The @CDCgov has a more comprehensive list of symptoms.
As #kids are going #BackToSchool without mitigation measures we can expect to see child cases increase and families need to know how to spot infection and when to get a #PCR#test. (Keep reading)