Phil Booth Profile picture
Sep 10, 2021 28 tweets 35 min read Read on X
"#Data: a new direction" - a public consultation by @DCMS on "reforms to the UK’s #DataProtection regime":

gov.uk/government/con…

The consultation ends on 19 Nov 2021, and you can respond by e-mail to DataReformConsultation@dcms.gov.uk or online here:

dcms.eu.qualtrics.com/jfe/form/SV_4P… Image
A quick sample of initial reactions...

We're clearly going to be hearing a lot about #LegitimateInterests, as well as #commercial and #public ones. The real question being, how do this Government's interests actually align with YOURS?

140+ pages on a Friday is a lot to digest, but @lilianedwards' "penumbra of often futile determinedly populist ideas largely not evidence-based" seems entirely consistent with @DCMS's Drunkard's Walk through #data and #ID this past year...

But... but... it's all about #innovation, don'tcha know?

OF COURSE their plan is baldly profit centric. What else is Government for? (I'm also not entirely sure that at this point they'd recognise a #principle, even if they happened to read one...)

REALLY important point from @CampaignFoI that shouldn't be lost.

Weakening #SubjectAccess would be a direct assault on our fundamental #rights as #citizens within the #InformationSociety:



#DataProtection IS NOT #FreedomOfInformation and never should be!
A point emphasised by @WorkerInfoX, which uses #SARs in challenging unfair dismissals and making algorithmic management systems transparent:



HT @lilianedwards
Then there's this [Thread] of [Threads] from @WolfieChristl:



Prompted in large part by those ever-expanding (and ever-expandable) #LegitimateInterests... Image
(a) doesn't seem *too* contentious - though a person's "#concerns" aren't the same as criminal #acts.

While delivering #statutory public comms *may* make sense, who decides what is & what isn't a "public health & safety message" for (b) - plus, #AllYourMailingListsAreBelongToUs? Image
Not sure (c) should be a "#LegitimateInterest" as much as a #LawfulObligation. Indeed, depending on the type of #bias, I think it already is!

(d) is transparently what #AdTech has lobbied for; not so much a 'massacre of the #cookies' as @OliverDowden selling you down the river.. Image
#Security is good, and necessary - but wouldn't (e) provide a blanket excuse to, say, read anyone's or everyone's e-mails?

Ditto safety, in which (f) could play out in... unpredictable ways - especially under the coming #OnlineHarms regime.

#BewareWhatYouWishFor! Image
Not sure (g) does anything at all - though it clearly intends to give that impression. You'll still be #processing #PersonalData, so people's DP rights should apply.

I suspect the real intent here is more to do with "#CompatibleUses", which hasn't played out so well for #GPdata! Image
(h) is *exactly* the clause @Google got into its #ProjectNightingale contract with @Ascensionorg:

businesswire.com/news/home/2019…

i.e. 'Now all your #patients' data is flowing through our systems, let us use it to i̶m̶p̶r̶o̶v̶e̶ train our #AIs - and then charge you even more!'

🤦‍♂️🤦‍♂️🤦‍♂️ Image
And finally (i), which again seems like an existing #LawfulObligation - unless @DCMS has never heard of (or doesn't understand) #DataMinimisation?

All in all, the list reveals more about who Government's been listening to and how poorly it grasps existing law than anything else. Image
This [Thread] by @ds_m4riano doesn't so much 'scratch the surface' of the Government's plans as gut them with a fillet knife!



And here's the blog post that goes with it:

openrightsgroup.org/blog/why-on-ea… Image
When the @FT calls Government's so-called 'business-friendly' #data proposals "#foolhardy", its recent data initiatives "#lamentable" and an "#assault on rights", and its policies even more #extreme than China's, then you know you're in trouble...

Image
Excellent [Thread] by @owenboswarva:



...with whose assessment I also agree, on @DCMS having put in some self-evidently batshit suggestions to "draw fire".

I might be more convinced by mention of "Privacy Management Program(mes)" if the Government...
...showed any sign of #accountability itself & wasn't so obviously hell-bent on tearing up #governance across the board (cf. 'extract once, use many times').

Entirely as predicted, its 'bonfire of the #regulations' looks more like the systematic dismantling of citizens' #rights.
N.B. "#PrivacyManagement Program(me)s" aren't a daft idea:

priv.gc.ca/en/privacy-top…

...especially if you don't have a GENERAL #DataProtection Law that covers *all* data processing. Canada's #PIPEDA covers mostly private sector #commercial activities, not all #federal entities... Image
...which might go some way towards explaining why the UK Government seems so attracted to the notion.

Worth noting #PIPEDA's replacement, #DCIA/#CPPA, is still predominantly focused on #PrivateSector data use:

ic.gc.ca/eic/site/062.n… Image
A carefully #balanced view from @Pinsent_Masons, who spotted the Government's interest in #DataTrusts - in particular "what predefined criteria would have to be met to #remove the need for recourse to #consent"(!):

pinsentmasons.com/out-law/news/u…

One the one hand... and on the other: Image
And a healthy dose of #scepticism from a man who knows his onions, on 'building #trustworthy AI systems':

[Thread]

Gotta wonder if @ICOnews's 'contribution' will continue to favour '#innovation' over people's #rights and effective #enforcement:



Or if it'll be as forthright as @NDGoffice has been about @NHSX's recent 'data strategy':

gov.uk/government/pub… ImageImageImageImage
Oops! @DCMS should've chosen its examples more carefully, if it didn't want to give the game away:

techcrunch.com/2021/09/09/uk-…

While the @Moorfields research is admirable, mentioning @Google @DeepMind and the #NHS will more likely remind people of the illegal @RoyalFreeNHS deal 🤦🏻‍♂️ Image
N.B. For those who believe doing #ethical #scientific #research without people's #knowledge and #permission is *ever* OK, a #Tuskegee [Thread]:



(The impacts of this are playing out, even to this day...)
Here's a more recent example of what @DCMS's '#DataReforms'
as proposed would define as an automatically "#CompatiblePurpose" for "#ScientificResearch", requiring no "#BalancingTest":



and that's even before they get lost in the thicket of #AI #fairness!
Excellent breakdown by @RobertJBateman of the 74 - count 'em! - #DataProtection "#reforms" the Government is proposing:



(And yes, 38 is a doozy!) Image
Another couple of initial reactions, first from @alex_mizzi of @hk_employment:

employment.howardkennedy.com/post/102h6g6/d…

and a helpful summary from @DLA_Piper:

blogs.dlapiper.com/privacymatters… Image

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More from @EinsteinsAttic

Dec 29, 2022
Nah. This is another puff piece on the #WaitingList pilot, details of which @NHSEngland published - without daring to mention @PalantirTech - over ten months ago...

england.nhs.uk/coronavirus/wp…
To be clear, 30 individual NHS Trusts* are using #Palantir #Foundry to manage elective care waiting lists, not patients' entire medical histories - largely by what Ministers have called "cleansing" the data:

palantir.com/uk/healthcare/

*Though @NHSEngland won't say which ones...
The timing (and placement) of the piece is, however, quite obvious - with the tender for @NHEngland's "#FederatedDataPlatform" imminent.

And the #FDP - whether awarded to #Palantir or otherwise - is most definitely something people will have concerns about, especially given...
Read 5 tweets
Nov 13, 2022
This headline 👇 will be no surprise to anyone who's been following @NHSEngland's plans (and actions) for a while.

But @JonUngoedThomas's article reveals some crucial details about what's intended for your #NHS #HealthRecords that are worth unpacking...

theguardian.com/society/2022/n… Controversial £360m NHS Eng...
First, and possibly most significantly, is @NHSEngland officials' confirmation that its '#FederatedDataPlatform' will incorporate patients across England's #SharedCareRecords: Health officials confirmed ...
Why is this so important? Because #SharedCareRecords - which every new #ICS* is supposed to have - include your #GPdata, which @NHSEngland has been trying to get hold of for years (most recently last summer)...

__
*#IntegratedCareSystem explainer here:

kingsfund.org.uk/publications/i… Map 1: The 42 integrated ca...
Read 21 tweets
Nov 1, 2022
So let’s talk about where things got up to with your #HealthData, before Rishi Sunak started talking about the need to generate trust in Government with “#integrity” and “#accountability”…

gov.uk/government/spe… I will unite our country, not with words, but with action.
Earlier today we got a bunch of detail out of @NHSDigital’s Board papers and services performance pack - what of that will continue post-#merger?



N.B. The chair of NHS Digital announced today’s meeting would be the last public meeting of the Board...
With the news that the Government is rushing through @NHSEngland’s takeover of the statutory safe haven (@NHSDigital) with about the level of planning that went into the 'fiscal event', where exactly *are* things as the former/new Sec State starts work?

Read 31 tweets
Nov 1, 2022
While the chaos of '#AcceleratedCitizensAccess' to #GPrecords continues to unfold:



...we've come across some perturbing items on the agenda for @NHSDigital's Board meeting this afternoon 👇 which I'll pick up on in this [Thread].

nhs-prod.global.ssl.fastly.net/binaries/conte…
First, beginning on page 158, are some Directions that @NHSEngland must know will be HIGHLY controversial - given they are telling @NHSDigital to use @PalantirTech's #Foundry to collect *patient level identifiable data* from hospitals... 1 Executive Summary  NHS England are directing NHS Digital t
I'll tweet as I do a read-through, but even these first two paragraphs are incoherent, e.g. "...in a way that will enable." Enable what?

And if @NHSEngland Directs NHSD to use #Palantir, NHSE is *determining the purposes and means of processing* - i.e. it is a #DataController... Whether you are a controller or processor depends on a numbe
Read 25 tweets
Oct 30, 2022
Hmm. Why would @ukhomeoffice choose to announce this today:

gov.uk/government/new…

...making explicit reference to "the findings from the Independent Review of #Prevent, led by William Shawcross", WITHOUT PUBLISHING THE REVIEW?
It's not like publication of the #PreventReview wasn't long overdue *nearly a year ago*...

independent.co.uk/news/uk/home-n…

From December 2021: Review of Prevent counter-e...
...and yet, despite having been submitted to @pritipatel in April 👇, and #leaked in May 2022:

theguardian.com/uk-news/2022/m…

...and then #teased in September:

telegraph.co.uk/politics/2022/… The findings of the report,...
Read 5 tweets

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