Discover and read the best of Twitter Threads about #crpd

Most recents (24)

A certain autism service organisation I've dealt with for 12+ years tends to have staff and leadership churn, causing them to lose all their institutional knowledge.

This has lately resulted in me dealing with a nice, new, freshly gratuated appointee, who knows very little.
So every few staff-churn cycles, it seems that they go, "Oh dear, we've been doing mainly children, we'd better chat to some adults to find out what services they need."
I think this one is also becoming as perplexed as the last two were who were sent to talk to that difficult activist in their jurisdiction (me).
Read 19 tweets
[THREAD] The movement to #BanABA in South Africa is gaining ground. We're now getting through to some of the right people in legislature.
One of the things we need (both locally and internationally) is to help people currently involved in selling, promoting, delivering and buying ABA services to make plans to move out before such bans come into effect.
If we don't start working on this now, we may meet with STRONG opposition, and even if we get the bills to pass, we may have a lot of people going underground or disguising what they do whilst pretending to not use behaviourist practices.
Read 14 tweets
When you're an autism organisation run by ABA promotors and you choose to have your autism conference in a country 🇬🇭 that also happens to be one of the most notorious for its abuse of LGBTQ+ people, then we need less reminding that ABA and #ConversionTherapy are the same thing.
Read 6 tweets
[THREAD] Autism research could prioritise researching abuse.
Examples of abuse.
Categories of abuse.
Read 118 tweets
These 'experts' want autistic children to be accepted in society someday, but they cannot even accept what thousands of speaking and nonspeaking autistic people say about what what works best for them.
Based on what they are modeling for parents and for society as a whole, how on earth do they expect to succeed in reaching their magnanimous lofty goal?

#NothingAboutUsWithoutUs
Here's the challenge, O Magnanimous Autism Experts! This is for you!
Read 43 tweets
The core element needed for anyone to adopt ABA for use on vulnerable autistic people is #ableism. The cult of ABA believes that ABA helps autistic children. To provide this 'help', it is important to strip the subject of their agency and to get them into self-preservation mode.
While most ABA practitioners no longer use slaps and electric shocks, all ABA regards the work of Rekers & Lovaas as part of the evidence base in support of ABA. Rekers went on to use behaviour modification against gay and trans people, while Lovaas continued with autistics.
Today there is an international movement to #BanConversionTherapy and #BanABA.
Read 45 tweets
[THREAD] #AskingAutistics and allies, especially people in Africa or of African descent throughout the world: We need your help. A bad thing has happened for #DisabilityRights in Africa: ABAI has sponsored an American, Ashley Knochel, to promote ABA in Africa by formalising it.
There has been a neocolonialist trend with aggressive ABA infiltrations from America into Ghana, Kenya and other countries for some time now, including a CARD-associated organisation in South Africa; but this latest move is worse.
This American person has established a Pan-African Association of Behaviour Association along with Kenyans, and they are launching this Saturday.

facebook.com/panafricaaba/
Read 39 tweets
Referring to :

ohrc.on.ca/en/news_centre…

And


I Cite examples of actions and basis of actions you have taken in recent history.

You have acknowledged & stated Ontario recognizes its obligations in regards to the #CRPD (1/?)
On June 11, 2021 the Minister acting as head of #ODSP, Todd Smith acknowledges what their publicly released stats have stated, that the majority of those on ODSP cannot work. (hence, the entire point of the program)
2/
May 22nd 2021 Premier Ford (via a press conference)
"its very tough for people on ODSP" "we're gonna help them anyway we can" 3/
Read 16 tweets
[THREAD] KEY CONCEPTS FOR AUTISTIC ADVOCACY
In this thread, I am going to provide definitions for some of the key concepts which often feature in discussions, training, arguments and even academic papers about autism.
Defining them and agreeing about the definitions can help us reduce our arguments and gain consensus more quickly -- or at the very least, it can help to ensure that we're at least arguing about the same thing, even if we don't agree about how to approach it.
Read 171 tweets
I have repeatedly stated that while I support the #StopSpectrum10K campaign, I am in favour of genetic and biological research. There are numerous autistic activists with chronic illness who feel the same. Some even attend biology research conferences.
We know that the @spectrum_10K do not support the social model of disability. That is not news.
It came as something of a surprise that the @spectrum_10K leaders deliberately appointed the type of people they knew would destroy the hope, relatability, community-building and support offered by people like Pete.
Read 35 tweets
Pete was a great community connecter, a good explainer and a humble learner. He was helping people who don't usually #ListenToNonspeakers realise that nonspeakers deserve our advocacy and amplification. I am angry with the leaders of @spectrum_10K who are to blame for him going.
Maybe you will say that the leaders of @Spectrum_10K are INDIRECTLY to blame. I disagree. This is squarely their fault. They enabled this, they continue to support this. They deliberately keep their ambassadors out there to say their quiet part out loud.
An organisation which finds that its representatives are not representing them well, can reel them in or dismiss them.

Read 49 tweets
The online review of #France by the UN Disability Committee starts today at 12.30 pm CET. You can watch the dialogue live in English, French and International Sign. #CRPD25 #CRPDNow

We will be live-tweeting.

👉 media.un.org/en/webtv Review of France by the UN ...
L'évaluation de la France par le Comité ONU sur le handicap commence aujourd'hui, en ligne, à 12h30. Vous pouvez suivre la session en anglais, français et langue des signes internationale. #CDPH25

Nous allons twitter en direct (en anglais).

👇
media.un.org/en/asset/k1b/k…
Review of France starts now with an introduction by French delegation and presentation of the French report by the Secretary of State in charge of People with Disabilities @s_cluzel. Today the Committee will ask questions on articles 1 to 10 of the UN Convention. #CRPD25
Read 40 tweets
BAN OF CONVERSION THERAPIES FOR AUTISTIC PEOPLE [THREAD]

"Conversion therapies are pseudoscientific practices of trying to change an individual’s behaviour to conform to the social expectations of a particular culture using psychological and physical interventions."
"Various jurisdictions around the world have passed laws against LGTBQIA+ conversion therapy."
"However, the same underlying techniques of coercion continue to be applied to young autistic children and other vulnerable people, as can be seen in [the School of Psychology, University of Auckland] description of the scope of Applied Behaviour Analysis (ABA)..."
Read 18 tweets
Also, before I go there: if you're an autistic person who speaks, this is a reminder to please be alert to how some autism organisations will use you in their marketing to prevent criticism of their stance on nonspeakers.
They will say autistic instead of 'person with autism', because they know you like that. They will remove the puzzle pieces from their branding. They will have you do a guest blog post or video for them. They will even let you 'celebrate autism'. You will think they're listening.
Here's a suggestion: Write an open letter to the autism organisation which is supporting your cause and which is saying "neurodiversity" and "acceptance" now. Ask them whether they support the broad principles of the #BanABA movement. It's a simple question.
Read 37 tweets
[THREAD]

I'm fiddling with the content taxonomies on my blog, so I thought I'd post some of the tag pages for the most common themes here.
My articles tagged #ABA
tania.co.za/topic/ABA/
Read 9 tweets
[THREAD]
Today someone mentioned that for their psychology degree's ASD and ADHD module, they have to read ‘Autism: a very short introduction’ by Uta Frith (Oxford University Press, 2008).

Here, dear reader, is what psychology students are being taught, and it's bad.
“There are now a number of people who have diagnosed themselves as having Asperger syndrome. These individuals often call themselves Aspies, and they feel different from NTs or neurotypicals."
Bear in mind, Asperger Syndrome was removed as a label from newer editions of the DSM after this date, and the phenomenon was combined with Autism Spectrum Disorder. But students still get prescribed this. And now it gets worse:
Read 23 tweets
One reason why disabled people generally get a raw deal from society is because the organisations designed specifically to serve them are often bastions of ableist hypocrisy.
Every SEN school, residential facility, disability service organisation and local SASSA office should set a transformation timeline for appointing at the very least a representative number of disabled staff, especially in leading roles.
They should ALL be trained in the #CRPD and in anti-ableist practices. If the actual disability sector can't model it for the rest of society, how on earth do they expect general institutions to become more inclusive?
Read 19 tweets
Our #MentalHealth system uses force on at least half of all inpatients.

One ‘justification’ I’ve heard from psychs is this:

“If we didn’t use compulsory treatment we’d be neglecting people.”

Is that so?

Let me call out this dreadful argument on #neglect... (a thread)

1/7 Graphic with text. It says: “if we don’t hurt you, we’
Check your #paternalism.

Thinking you know what’s best for others is paternalism. How can you possibly know? Many of us have healed without you.

Try trusting that your patients are the experts on their own lives.

That’s not neglect, it’s respect.

2/7
Check your #hypocrisy.

The mental health system is already a master of neglect.

You ignore trauma, abuse, homelessness, poverty & other social issues.

You don’t offer talking therapies, peer support or crisis respite. Just meds & shocks.

That’s actually neglect. Sheesh.

3/7
Read 7 tweets
Campaign starts TODAY: #AllowAACinTherapy. It's aimed at doctors, psychologists and other clinical professionals, and at the institutions that empower them to disempower disabled people. I have seriously had enough of this nonsense from them.
Doctors do this regularly to one of my friends who is mostly nonspeaking.

A psychologist did it to me when I at a time that I lost speech frequently.

Professionals should #AllowAACinTherapy. #CommunicationFIRST, not 'speech first'. They must stop violating the #CRPD.
People with communication disabilities should not be expected to make appointments using a telephone. You should not have to register as a Deaf person to be allowed to use AAC.

#AllowAACinTherapy

un.org/development/de…
Read 17 tweets
It's been more than 5 years since this happened, and still there are schools in the USA and in other countries that won't allow nonspeaking autistic children the support they need to participate in class, even if their parents pay the aides themselves.
autisticadvocacy.org/2016/05/a-voic…
During those 5 years, several nonspeaking activists emerged who were once reliant on pointing to a letterboard, but who now communicate by typing independently, either from time to time or all the time.

Canadian Damon Kirsebom is one of them.

tania.co.za/reframing-seve…
Damon is a nonspeaking communication and education rights advocate.

Unlike the US, Canada has ratified the #CRPD. But that still doesn't mean that its provisions have been carried through and that autistic people now all have the support they need.

Read 8 tweets
People with disabilities are often excluded from #DevelopmentResearch. People with complex/multiple impairments such as #DeafBlindness are often excluded even from development research that focuses on disability. We wanted to challenge that & work with the most marginalised.
A team of @IDS_UK researchers including @B_Rohwerder & I recently undertook a study with the #InclusiveFutures initiative to understand how people with complex/multiple impairments had experienced the #COVID19 pandemic & associated lockdowns opendocs.ids.ac.uk/opendocs/handl…
We undertook narrative interviews in #Nepal & #Bangladesh. 🇳🇵🇧🇩 We found that the pandemic and responses have had devastating and life-changing detrimental effects on people with disabilities from the most marginalised groups.
Read 5 tweets
Last week a group of ABA practitioners released a video acknowledging #ActuallyAutistic critiques saying #ABAisAbuse

When I replied saying that we don't accept their apology they stopped advertising it on twitter

I assume it's circulating #Autism facebook groups for PR
This is a marked charge in tactics; acknowledging our complaints and attempting to speak to them to control public perception

This is a sign they are threatened

The Autistic community has a pretty clear majority position: we need to abolish ABA and protect kids from abuse
If you are an ally that's felt comfortable joining the critique of Sia please consider taking up #ABA as a target

Autistic non-speakers are again at greatest risk here; a trend you will see repeated if you are a new ally
#ABAisAbuse
stopabasupportautistics.home.blog/2020/01/08/why…
Read 17 tweets
Liikuttaako? A report for the survey on physical activity for persons with a disability (n=1213) and the related survey conducted with sports clubs (n=334) has been published @FinnParalympic in cooperation with @ltsfi . Here are some key findings in English (1/9): Image
The majority (65%) of PWD were female. PWD were categorised into age groups (18 and below; 19–29; 30–64; 65+). 2/3 belonged to group 30–64 yrs. Most popular activity groups were private, other sports associations (not sport clubs!), and municipal groups. (2/9)
50% of PWD had to reduce physical activity and exercise due to #covid19; 70% move less than is recommended; 65% would like to move more. The cost, lack of an exercise partner or group, disability or state of health and fear of coronavirus were biggest barriers. (3/9)
Read 9 tweets

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