Discover and read the best of Twitter Threads about #crohns

Most recents (10)

Update 15 March #COVID19 and #IBD. Due to the active communication of colleagues around the globe, we are now aware of several worldwide cases of #COVID19 in patients who have IBD, including one child.
1/
Reports that the #IBD adults are in Italy, Austria and US (NJ), the child is in Madrid, Spain.
The child has #Crohns receives Humira + 6MP. She presented with fever and cough, was not hospitalized, and is doing well.
I do not have more details on the adults yet. #COVID19
2/
It was expected that we would see #COVID19 affect our patients with #IBD, as it is affecting the general population too, and it is great that we have systems in place to capture and to learn from these cases in real time. The international collaboration is extraordinary.
3/
Read 5 tweets
Here's my latest* update to my vetted collection of Twitter Disability and Chronic Illness hashtags. Please share it!

Thank you :-) Graffiti background. Foreground in black letters on a  white background to the left reads “Twitter Disability and Chronic Illness Hashtags”<br />
This collection is current as of 01.30.20, previous Twitter update 09.11.19.

There's a PDF version coming up this weekend, to be posted to my Kofi profile. I'll add the link toward the end when it goes up, after the questions, where you can also sign up for email updates.
This version has added

- community suggestions,
- mental health hashtags,
- Medical crowdfunding hashtags,
- and a section for cancer-related hashtags.
Read 84 tweets
The UCP does NOT understand how devastating removing brand name biologics from the list of covered drugs could be. Let me explain..edmonton.citynews.ca/2019/11/18/cro…
Biological drugs are very expensive. They are genetically engineered antibodies that target specific molecules in our bodies that contribute to a disease process (like cancer, inflammation). They do not always just block the molecule from engaging it’s receptor.
Sometimes they have other actions (like inducing apoptosis/cell death) or activating receptors, or signaling other cells to eat the molecule/cell that the antibody binds to. That means that depending on how the antibody was originally designed, the therapeutic effect is different
Read 10 tweets
Here’s my latest update to the list of Twitter #Disability & #ChronicIllness Hashtags.

- previous update 02.24.19 -

Please share it! Thank you. :-)

@ImageAltText Graffiti background. Foreground in white letters on a  red background to the left reads “Twitter Disability and Chronic Illness Hashtags”
There will be a PDF version up for download on my Ko-fi, likely tomorrow morning. The link is at the end.
Hashtags For Personal Narratives.

These hashtags are for sharing your stories & experiences. Also good for crowdsourcing solutions.

#InvisibleIllness
#MySpoons
#MyPainDay
#ShareOurPain
#ShareOurStories
#SpoonieStories
Read 58 tweets
[THREAD] I've kept it a private matter until today, but after mentioning on another thread that I'd been diagnosed with #crohnsdisease earlier this year, and subsequently achieved remission without meds, I had people interested in learning more about what I did. Hope this helps:
Firstly, let me establish that I was indeed diagnosed with #Crohns. Here is an excerpt of my colonoscopy report (identifying info has been removed).
Next, let me establish that I have achieved remission. Here is a blood test from last November. Note the C-Reactive protein and Sedimentation Rates (markers of inflammation in the body) are waaaay above the normal ranges.
Read 32 tweets
Not sure what to expect at the 2019 BHP Research Showcase? Our free public event will be held at @qehbham on Fri 17 May, where you can get hands-on with our health research. If you want to #BePartOfResearch, take a look through our exhibitor info THREAD > birminghamhealthpartners.co.uk/research-showc…
Our #cardiology stand will focus on current studies that are changing & saving the lives of our patients. Our cardiology team is one of the largest in the UK and works closely with @ICVS_UoB to treat every type of #heartdisease
#BePartOfResearch
.@UmbrellaHealth is the home of #sexualhealth services for Brum & Solihull. They'll be here with interactive displays highlighting research into #HIV and #STIs, including #antimicrobialresistance and bacterial vaginosis >> umbrellahealth.co.uk
#BePartOfResearch
Read 23 tweets
Here's my latest update to my collection of active Twitter #Disability & #ChronicIllness Hashtags - previous update 12.13.18.

Please share it. Thank you! :-) Light blue sand background has the # drawn in the sand to the right. The left side is blank. <br />
<br />
At the bottom of the picture, text reads
Portable PDF version will appear on my Kofi in the next day or so.

Link: ko-fi.com/TinuWrites
HASHTAGS FOR PERSONAL NARRATIVES

These hashtags are for sharing your stories & experiences. Also helpful for crowdsourcing solutions.

#InvisibleIllness
#MySpoons
#MyPainDay
#ShareOurPain
#ShareOurStories
#SpoonieStories
Read 45 tweets
#ff
7 September 2018  #BeatCancer
@Bradleysfight May Bradley Rest In Peace and his family and friends always be comforted by his memory. I hope the #HelenRollasonAward 2017 from BBC
Sport will have helped them.
#ff
7 September 2018  #BeatCancer
@harry_moseley @Jack_Marshall_ May they
Rest In Peace and may their families and friends always be comforted by their memory.
#ff
7 September 2018  #BeatCancer
@Rachael_Hodges @steveevans51 @_StephensStory May Rachael
Bland, Steve Evans and Stephen Sutton Rest In Peace and their family and friends always be comforted.
Read 18 tweets
1. If you want to understand what causes Crohn’s disease, ulcerative colitis, or actually many other chronic illnesses, and why most medicine doesn’t seem to treat it, I want to explain what may be happening. (thread)
#crohnsdisease #ulcerativecolitis #ibd #chronicillness #crohns
2. This hypothesis is a collaboration between my wife and I, and is based on longstanding research + some new studies that have come out in the last year or so.
3. Crohn’s disease is a chronic inflammatory condition of the gastrointestinal tract. Like many of the other inflammatory bowel diseases, it can be a debilitating illness that makes life a living hell. If it gets bad enough, it can kill.
Read 75 tweets
THREAD: On Friday, to mark the start of #IBDAwarenessWeek, the wonderful @bottomline_ibd published a series of videos highlighting advice to those newly diagnosed with #IBD (#Crohns, #UC or #INDColitis). Thought I'd try and collate them here and then unroll...
1. First up @BigWoofa from Peterborough. #IBD #IBDAwarenessWeek #IBDVoices
2. Next on to Brighton's @quitegutsy #IBD #IBDAwarenessWeek #IBDVoices
Read 12 tweets

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