Discover and read the best of Twitter Threads about #actuallyAutistic

Most recents (24)

Whoa. (formally diagnosed, not that one has to be to be #ActuallyAutistic)
That last bit about eye contact making it harder to think. OMG.
Weirdly it isn't a problem over videoconferencing, and we actually prefer seeing people's faces on conference calls.
Read 3 tweets
🎭The Masked Autistic Quiz🎭

If you’ve spent your life ‘faking normal, you might not look autistic to the casual observer. So I’ve made a questionnaire that’s tailored to the masking autistic adult.

#ActuallyAutistic #AllAutistics
This isn’t an official test, and I am not a doctor. But if you find yourself answering ‘yes’ to many of these questions, you might want to look into the possibility that you’re an undiagnosed autistic.
1. Have you ever felt as if you were missing the built-in instruction manual that everyone else seemed to possess?

Did you spend an inordinate amount of time learning to copy the behavior of other kids so that they wouldn’t realize you were different?
Read 31 tweets
Well, last night's feeling that April is starting *early* was validated today, with @autismspeaks 's announcements.

So, as a PSA for those who want to do right by #ActuallyAutistic people ... Don't buy into it. Any of it.

It sounds lovely, but is very problematic. (Thread)
The idea that the change of logo design came from *listening* to autistics is laughable at best.

Someone who was listening wouldn't have merely re-coloured the puzzle piece that the community finds offensive.
They wouldn't have left the dominant colour blue, as they would have heard the community's thoughts on how the gendering of autism hurts girls, women, and non-binary folks when it comes to matters of DX and representation.
Read 13 tweets
Inspired by @AspieHuman. I will make my own thread of being #actuallyautistic and that's OK. (Note: I did not know I am autistic until 25.) 1/
In elementary school in the Hong Kong, I was quiet. I didn't quite fit in with my classmates in an all-boys elementary school. However, I received quite a bit of hazing because of my arts and crafts skills. 2/
In middle school in the USA, it was my first regular exposure to girls in 6 years. There were 2 girls that I liked when I was with them in GATE (short for Gifted and Talented Education program) class. However, my shyness + lack of confidence in English held me back. 3/
Read 12 tweets
Why feeling like ‘I don’t fit in’ is different for #ActuallyAutistic’s to non-autistics - a thread. /1
It’s true that many people feel like they don’t fit in, especially teenagers. These feelings should never be ignored, as that can have serious consequences. However, feeling like you don’t fit in is majorly different for autistics than it is for non-autistics. /2
Most autistics grow up feeling different. In fact, ‘always having felt different’ is a key feeling which unites the #ActuallyAutistic community. When one feels different, this tends to lead to feeling like you don’t fit in, because you are not like everyone else. /3
Read 14 tweets
The autism spectrum represents differences in cognition, sensory processing, verbal communication, adaptability, repetitive behaviors, social awareness, and so forth.

If each difference has its own color, then we aren’t just ‘on’ the spectrum. We’re all over it.
The autism spectrum also changes for each person over time.

Somebody may be ‘high functioning’ in certain areas under normal circumstances, but lower functioning during shutdown or burnout.
Read 6 tweets
I'm proud to have worked with a fantastic group of activists to help develop @BernieSanders's disability policy plan. (1) #CripTheVote
@BernieSanders It's an impressively comprehensive document, worth reading in all of its 13,000+ words, but there are a few items I think are particularly worth highlighting: #CripTheVote (2)
@BernieSanders The plan starts with a number of actions the executive branch can take to advance disability rights without relying on Congress. Given the current state of gridlock, that's a big deal. (3)
Read 16 tweets
Here's my latest* update to my vetted collection of Twitter Disability and Chronic Illness hashtags. Please share it!

Thank you :-) Graffiti background. Foreground in black letters on a  white background to the left reads “Twitter Disability and Chronic Illness Hashtags”<br />
This collection is current as of 01.30.20, previous Twitter update 09.11.19.

There's a PDF version coming up this weekend, to be posted to my Kofi profile. I'll add the link toward the end when it goes up, after the questions, where you can also sign up for email updates.
This version has added

- community suggestions,
- mental health hashtags,
- Medical crowdfunding hashtags,
- and a section for cancer-related hashtags.
Read 84 tweets
When I was little, my older brothers were diagnosed w/ Asperger's. This was in the 80's & early 90's when we didn't know much abt the condition. But my mom--I got lucky w/ my mom. She did tons of research on the condition, she never shamed my brothers, & welcomed it as a gift.
When I was 9 or 10, my mom had me tested. I am an outlier in autistic women; I got my diagnosis as a child. This was around 1998-1999, so they talked about prescribing medication for me since I wasn't doing well in school. I firmly, firmly refused. I promised I would do better.
Somewhere around that time, I resolved to be more normal. Act like other kids. Not clap my hands over hands when I flushed a toilet because the sound hurt my ears, observe my female friends and mimic them, not wander around on my own telling stories to myself at recess.
Read 20 tweets
The first thing I saw on Twitter today - just awful. I have a few #ActuallyAutistic thoughts on this bigotry and misinformation.

A thread, assuming I can figure out where to even start. What a mess.
I guess let's go top down.

If we "appear unresponsive", it's because we're ignoring you, Karen. Allistic people tend to have no idea how loud and obnoxious they can be, never mind how overbearing and in-your-face they can be. It's all too much- shutting down helps shut it OUT.
"Eye contact" is a thing that varies wildly from culture to culture, and feels/means something different to different people. Would you be so dehumanizing about people from a different country who aren't as obsessed with making.maintaining eye contact?

Wait, don't answer that.
Read 20 tweets
Cn childhood trauma, ablism

#ActuallyAutistic #AskingAutistics
I have a theory I'd like input on: that alexthemia is so common in autistics largely bc it's a c/PTSD response that happens to be an incredibly common result of the way our emotional responses are /1
Cn abuse, ablism, panic attacks

Gaslit and punished starting from childhood

Basically i recently had a thing were i was experiencing a lot of stress but repressed it wo realizing i was doing so until it induced a panic attack /2
Cn ablism, abuse, panic attacks

And even after identifying the things that had been stressing me out, a part of me kept trying to say those things weren't enough to warrant having a panic attack over. There must be a better justification /3
Read 25 tweets
I’m autistic. I don’t have autism. #ActuallyAutistic
I am autistic. I don’t have autism.

I can’t put my autism down or leave it behind. It is essential to who I am and how I experience the world.

I am autistic.

#NOTwithAutism #ActuallyAutistic
Autism isn’t a friend, or an accessory.
It’s not a sickness or a disease.
I’m not vaccine injuried. I’m not broken. I’m not a burden.
I’m autistic.

#NOTwithAutism #ActuallyAutistic
Read 4 tweets
What people have done in focusing on 45's attack of Greta Thunberg rather than amplifying her Person of the Year award for her activism is become complicit in his appropriation of her moment. No one has centered her work or her value as an #ActuallyAutistic activist.
Even leveraging his attack as an excuse to discuss gendered ableism victimized someone who is a singular teen leader for the greater good of our planet. That was why she won @TIME Person Of the Year. To make her work matter.
We need to refocus and make this about her monumental achievement and not about an old man who cannot bear to see such a young person achieve so much.
Read 3 tweets
Welcome to #SchizoChat, the biweekly forum where we discuss a question about life with schizo-type disorders. I’ll ask questions and drop fun facts about the topic in this thread. Today’s topic is caring with someone with a schizo-type disorder!
As usual, please ask me your questions. I’ve been super busy running an experiment so I’m behind typing these out but I’ll get back to you as soon as possible. #SchizoChat
We here at #SchizoChat respect everyone’s opinions—please be courtesy and remember that these topics are really personal for people. We all have different experiences and that is good!
Read 127 tweets
This thread is in response to a recent thread by @leoniedelt that was interesting & provocative & hopefully won’t be a magnet for trolls, but as it stands, deserves a healthy debate.

As a bereaved parent & multiple trauma survivor & a psychiatrist of 30 years & a multiply

/1
#Disabled #ActuallyAutistic & #AutisticParent, I am very accustomed to being a member of heterogenous groups that share one overarching life experience that sets them apart from the rest of society.

In a bereaved parents’ group, we are there to support one another

/2
unconditionally.

Everyone is in the same boat, having suffered unimaginable loss, so it really isn’t cool to create a hierarchy of suffering based on how old your child was when they died or their cause of death or how many children died or how many are still alive or

/3
Read 25 tweets
#AskingAutistics #ActuallyAutistic #AllAutistics

Forms of affection other than 'standard' physical contact (e.g. hugs, hand-holding), eye contact, and saying 'I love you'.
Please reply with any you can think of.
Saying 'I like you'. For some reason, 'I love you' is considered this massive thing, yet 'I like you' is barely thought of. I find something very profound in it and think liking someone can be just as important as loving them.
Giving them a nice rock.

Rocks are good.

Though I would probably feel bad about moving the rock from it's "natural habitat".
Read 22 tweets
I’m asking @sainsburys to stop selling the magazine Getting Well which features an article on curing autism.

Please let @sainsburys know what you think of such quackery.

Thanks to @lecanardnoir for highlighting.
#ActuallyAutistic
“This ‘craniosacral therapist’ (meaning: someone who believes the brain throbs and you can feel it and manipulate that with your hands) sets out a lot of batshit nonsense about autism.”
@lecanardnoir

“Here is her quack recipe (note - no actual science). It’s a winning quack bingo card of vitamins, ‘gut cleaning’, detox, heavy metal elimination, Lyme and parasites. All nonsense on stilts.” @lecanardnoir

Read 9 tweets
It's more clear than ever that my mom is autistic AF. But she presents so utterly different than me and my kid it's bizaare.

But also super frustrating bc well, as my also #ActuallyAutistic bf said today,
"I can't tell if your mom is just always very angry and resentful or if she's just too autistic to realize she always comes off that way when she talks, aka yells, at people."

Like, she's always way loud and verbally agressive which seems angry.

As I told bf,
"Yes. Both, because she often comes off that way, and then IS ~always angry and resentful because everyone always thinks she is & she gets pissed.

And she gets mad/anxious many times a day to the point of verbal aggression from misunderstanding everyone else around her too."
Read 6 tweets
THREAD

I *hate* everything Tom Clements writes.

He only punches down at other autistics, pretending it's ok for him to self-advocate, but not us.

His brother is not the only teen/adult in diapers. He's not the only 1 with significant LD.

TC has NO clue.

#ActuallyAutistic
Those of us who spend inordinate amounts of time rebutting him; I want to ask you to please, please stop.

Don't QT him. Don't reply to him, 10x, with reasonable criticisms of his ludicrous, harmful nonsense.

Report him when he harrasses, uses slurs, etc; but otherwise, ignore.
He's not interested in ANYTHING you have to say.

His brother = the reason he thinks he's an advocate.

For some reason, your own non-speaking teenage kids, or your own history of delayed speech, or your current need for help with personal care/toileting, won't be good enough.
Read 8 tweets
Heads up, giant #ActuallyAutistic rant incoming. CW for abuse.
Twitter, I've been seeing a lot of disturbing articles about "seclusion rooms" being used against #ActuallyAutistic kids in both Canada and the USA... and the comments sections on them can be... well, something. So, I’d like to say a few words.
For one, I think that people come up with some pretty wild ideas in their heads about autistic kids, to justify seeing inhumanity as somehow being reasonable. Allow me to go off on a slight tangent here.
Read 31 tweets
Is Autism Self-Diagnosis Valid? A Very Long Thread

TL, DR: Yes. It’s valid.

Now for the long version: there are some folks on Twitter that say that some of us have no right to claim we are #ActuallyAutistic without an official diagnosis by a medical authority of some kind.
There are some problems with this mentality. One of the biggest is that some of us simply do not have adequate access to the formal diagnostic process. There are many things that can affect access:
lack of financial resources, social anxieties or phobias —
— which may make it difficult to persist in going to offices and clinics that may be frightening, some of us may have trauma that makes it difficult to approach these places at all.
Read 79 tweets
If you want to make someone look more autistic and challenged than they are, moving their baseline operating level of challenge upwards will do that. #ActuallyAutistic #Neurodivergence
If the demands on their coping skills and capacity are significantly elevated you will see smaller challenges causing greater deterioration in functioning and behaviour. It's distressing for the individual and others observing. #ActuallyAutistic #Neurodivergence
The higher the baseline of operation (reduced through improved circumstances, better health, resources and skills training), the more work it is to return to baseline and overcome challenges #ActuallyAutistic #Neurodivergence
Read 13 tweets
Let me tell you why I'm so worked up about this election. I was pregnant in 2009 & therefore a convenient scapegoat for the first round of cuts in further education, where i was contracted to work as a Computer lecturer & adult computer literacy tutor. I was pregnant by a man
Who wanted me to get rid of the baby and when I wouldn't, made my life hell. He refused to leave the house I rented, he was abusive in so many ways but it wasn't until I did the freedom programme several years later that I realised how bad things had actually got. So, heavily
Pregnant, I found myself a new place to live. He was furious I'd left and over the following years the stalking and bullying began. But that's a side issue to the politics of it. I had to go onto jobseekers allowance & attend employment courses with my big pregnant belly
Read 19 tweets
#Autistic people and industrial action: A THREAD.

Anyone who either follows me, or works in a UK higher education institution at the moment, probably won’t have missed the fact that members of UCU will be taking strike action from 25 November to 4 December... 1/
I thought I’d put together some thoughts on the potential impact of industrial action on autistics – whether they are participating or not. To make clear: I AM participating in the action. To make clear: I AM participating in the action... 2/
However, whilst striking is difficult for anyone, there are extra layers of difficulty for many autistics like me who might be doing so. (Caveat: I only speak for myself, but there are some generalisations that follow which will be quite widely applicable to others)... 3/
Read 51 tweets

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