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THREAD:#TransHealthEthicsProject interviews w/#trans folks are "thick" examples of barriers to care described generically in surveys. #doctors & #nurses often say "those patterns are terrible, but how can I know if I am doing it?" #narrativematters #bioethics #TransAwarenessWeek
I used a standardized array of interview questions across 15 hours of interviews with trans folks regarding their experiences seeking health care in the United States, both POSITIVE AND NEGATIVE, to give providers #narrative examples/guidelines on what not to do, AND what to do.
I did the interviews and my research assistants (@BreanneRBurton, Ren Czachor, Jake Richardson, and Harry Silvey) transcribed them so that no unknown persons would have access to the audio. While some participants gave permission to share audio, all permit sharing transcripts.
@BreanneRBurton To recruit participants, I worked w/a trans community group with whom I'd put in sweat equity. I continue to work with them after the interviews, as well. Researchers working on communities should be working WITH communities to avoid using them as mere tools in research agendas.
@BreanneRBurton In designing the #TransHealthEthicsProject, I kept in mind this excellent advice that I urge others to adapt to communities with which they work, as well, and to especially attend to if they work with trans folks. How do we build #reciprocity in #research?…
@BreanneRBurton I'll post findings from #TransHealthEthicsProject over the rest of #TransAwarenessWeek. The 1st Q I asked folks: what words/phrases spring to mind when you think about seeking #healthcare? The word cloud of responses is #realtalk. Let it sink in; more tomorrow. /END THREAD
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