Thread by @usnehal

I state, highlight, mark up, not insinuate
Why is someone who likely does not menstruate a sudden expert on #womenshealth to identify a WOC seeking #data #quality & #integrity as the threat...to women?
"Respecting" social science = using respectable methods, not online surveys.

https://twitter.com/OrganJM/status/1380253166718029832

What you see in the tweet and the "study" is ego, defensiveness & flagrant Dunning-Kruger effect for #womenshealth, #menstrualhealth, #COVID19, #vaccine #research.

The best way to demonstrate the value of a field is to be consistent on #quality not

sciencedirect.com/science/articl…

Academic language on #online #survey #data:
"systematically assess carelessness in a crowdsourced sample" Denial that quick & dirty is poor #quality is an odd use of time & ineffective. One could better defend one's merit, by delivering #quality per best practices and standards.

This is an extremely important issue that is bigger than anyone's ego or tribalism. #COVID19 #pandemic has killed >500,000 Americans and is already affecting #womenshealth via long COVID. Why ignore this to claim "side effect" of vaccine?

Be responsible

medicalnewstoday.com/articles/long-…

If one had authentic commitment to #womenshealth or #menstrualhealth would already know this: 65% of women, prior to #COVID19 #vaccine, were already experiencing menstrual irregularity due to stress, lifestyle change

Relevant to claiming "side effect"

womenshealthmag.com/uk/health/a339…

I am supremely unimpressed with a male anthropologist seeking to create an online mob - which is the go to tactic of anti-vaxx vs #tweetiatrician that do #SciComm to address vaccine hesitancy - to protect poor #quality #data on #WomensHealth & #vaccine

fiercehealthcare.com/practices/anti…

There are valid, even interdisciplinary ways to assess immune-biological mechanisms of vaccine "side effects" in the varied hormonal & physiological states that are found in #womenshealth from teen to menopause, including pregnancy.

Responsible #research & #quality #data needed

My intention: I am followed by multiple health reporters.

I outline valid vs invalid approaches and the the pro-science, pro-#woman, pro-#quality approach into the twitterverse so that illogical "side effect" "#data" #misinformation are not misused in a #pandemic. #Twitter

GIGO or "garbage in, garbage out" #data will be misused, of course. That is the nature of online #misinformation. It is often taken to the most vulnerable & already traumatized to add to existing reality-based fear of authorities.

This is my lane:
statnews.com/2017/05/08/mea…

Those who newly expert on #vaccines & #womenshealth or believe their own personal experience can replace responsible hypothesis generation or survey design for #qualitative research

are not dealing with this daily thus cavalier
(Menses=fertility btw)

statnews.com/2021/03/25/inf…

The best way to not make #qualitative #research a butt of jokes is to do it well and adhere to #quality #standards

My knowledge in this area is cuz I teach this, review such studies, publish

I recognize that factual women, WOC often invoke anger tho:

qz.com/work/1722398/w…

Question is, what is the most offensive to you?

1- You heard criticism backed up with academic standards, data, references, context?
Or
2-In a #pandemic we still struggle with #vaccine #Misinformation?

What is your priority?

What is your #SciComm?
scientificamerican.com/article/how-to…

The comments & retweets amplify the thread such that more people - who care about saving lives (not defending ego or tribalism) - can have access to the information on #womenshealth and #vaccine. (The actual commenters are not the target population for factual #SciComm)

But mostly, given the followership I have from #healthcare #media, this is out there as a source of references & context. You simply cannot collect biological "causation" #data, then wordsmith as "experience" of "side effects", on menses for all women via 15-minutes online survey

Some folks are focused on metrics of clicks and such. For me: long as people are better educated and have more access to appropriate benchmarks, standards, baselines, context, relevant information and are more capable of critical thinking for having read a tweet, that is success.

The more that ego-driven folks try to evade the issue of #quality #safety #data #integrity, defend things that have no logic/plausibility, the more they dig the hole they seem to be wanting to cover

There is valid #qualitative #research
Quality requires effort, not carelessness

For further context, my mother passed from #COVID19 a bit over a month ago, prior to her having access to the #vaccine. As a grieving daughter, I was dealing with explaining why the latest "#Twitter #research" was not valid on "side effects" This is as personal as it gets.

People can focus on ego. For others #COVID19 is literal life & death

What is your priority?

I'm exhausted addressing others' irresponsible #misinformation

responding w/ factual #SciComm

I am taking care of myself & those who will have #poor #data communicated to drive fear

When you do fieldwork at margins you hear the stories. Communicating the richness of human experience is what I thought anthropology is about. work.chron.com/cultural-anthr…
But this is not my field. If current anthropology #quality is defined by online surveys, you all know best.

I'll stick to producing #publichealth #COVID19 #vaccine #SciComm for marginalized communities as well as my work for #maternalchildhealth - that is my actual training. Where there are collisions, folks of tribal mindset, not committed to #quality will find I have a lot to say.

The nature of merging lanes is collisions. Not sure if you've heard of M*ssholes drivers?

You just found one.

#bostonstrong #Massachusetts #Masshole

theodysseyonline.com/11-signs-typic…

#Tweetiatrician have been playing catch up to the seemingly innocuous poor #quality #data from Wakefield #vaccine scare for a couple decades. We're on #Twitter w/ deliberate factual, pro-#science pro-#childhealth ( includes pro-#womenshealth) agenda

aappublications.org/news/2016/11/2…

Talking to oneself in long threads will, of course come across as odd. (Doctors who wear unicorn horns at work are odd) Thing with #pediatrics is we are SUPER nice to kids while having expectations of adults to protect the vulnerable and be responsible.

https://twitter.com/DGlaucomflecken/status/1356777363585994753?s=20

Every outlet or cabinet you put a child protective lock on is not actually a source of danger. Some are. #prevention mindset notices #risk & addresses early. It is why pediatricians become the "Cassandra" & put things out there for public to find like

https://twitter.com/usnehal/status/1355657528454078464?s=20

My lived experience as a WOC in marginalized communities as a member, #endometriosis patient & as a clinician make me very aware of what drives this. I use my time to address this via free accessible #publichealth #SciComm videos/content without paywall.

blogs.bcm.edu/2021/01/22/red…

This crowd is often the source of the greatest #misinformation online on #vaccines, often believing themselves crusaders of #equity, while generating the #disinformation that is taken to those at the margins to drive fear, barriers to care, even deaths.

sciencemag.org/news/2011/01/w…

There is some overlap between different URM & BIPOC communities in America, best described by what is described by black doctors. The rest of us experience a fraction of this but still do become the bridge between community & #COVID19 #pandemic health.

npr.org/2020/06/27/883…

When it comes down to life & death outcomes in a #pandemic, you will see what could be called a "frenzied" response or any other term you choose. Is the nature of overcompensating for #system & #leadership failures.
For some of us, this is our family:

apmresearchlab.org/covid/deaths-b…

That is not to discount the validity of #data #integrity or #quality in #research and #studymethods. Is easy to discount the content because of the volume
#Tweetiatrician #SciComm strategy: outcompete this #misinformation & #disinformation #MedTwitter

thelancet.com/journals/eclin…

If you were not there when my/others’ mothers ill or dying, not combatting harms that reached these women, I am not interested in your uninformed opinion/ego now.

I would do ANYTHING to have my mom back. Barring that, will protect other women from #misinformation & bad #data

Prof of “embarrassment” and “shame” @OrganJM is this woman sufficiently broken, depleted, in pain for you to feel hero now? Why do you need someone to bleed? Why not care about #data #integrity on #COVID19 #vaccine #womenshealth?

Why do you perpetuate this as an academic?

The more effective mislabeling of a WOC or POC who speaks up on basic #standards, #safety, #quality is by a woman, btw like:

In the future, manage your ego so your lack of commitment to #quality #data on #womenshealth or #COVID19 is not so exposed

bet.com/news/national/…

Am I “polite”?
Question is: how “polite”
..is it to add to #womenshealth #COVID19 #vaccine #misinformation?
..are >500,000 deaths?
..should a #scicomm #tweetiatrician be while in active #grief over loss of a mother?

I admit, I am no Dr. Birx

wsj.com/articles/dr-bi…

Help save lives
or
Generate valid, quality #data on #womenshealth #menstrualhealth #COVID19 #vaccine
or
Get out of the way of those who are

Women deserve #quality

Respect as an academic is earned

Use standards for #data #integrity
=everyone stays safe even if in others’ lanes

@threadreaderapp Please unroll