Discover and read the best of Twitter Threads about #SouthAsian

Most recents (19)

@rebelliousgut @MondayNightIBD @southasianIBD @ibdesis @Empoweringpts9 @DCharabaty @crohnsbabble @LivingWithUmeed @vkckiranpullela @TheMaveilousGut @dunung_ruchita 1/ I'm Tina from 🇺🇸 co-founder of Team @ibdesis. We are proud to lead #PatientExperience on @MondayNightIBD to discuss specific aspects of #SouthAsianIBD experience. We hope to improve care & reduce disparities in our community around the 🌍 thru @southasianIBD. #MondayNightIBD
@rebelliousgut @MondayNightIBD @southasianIBD @ibdesis @Empoweringpts9 @DCharabaty @crohnsbabble @LivingWithUmeed @vkckiranpullela @TheMaveilousGut @dunung_ruchita 2/ Even though my dad suffered from #Crohns, when I presented with #IBS #constipation, #GERD, joint pains & eye issues as a child, no one made the connection or escalated it to a gastroenterologist. #MondayNightIBD #SouthAsianIBD
@rebelliousgut @MondayNightIBD @southasianIBD @ibdesis @Empoweringpts9 @DCharabaty @crohnsbabble @LivingWithUmeed @vkckiranpullela @TheMaveilousGut @dunung_ruchita 3/ When my dad passed from #CRC, my family went into poverty & couldn't afford health insurance. Though I was symptomatic as a child, I didn't have a #colonoscopy until 22 when I got my 1st job. That's when I received my very delayed #IBD diagnosis. #MondayNightIBD #SouthAsianIBD
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@rebelliousgut @MondayNightIBD @southasianIBD @ibdesis @Empoweringpts9 @DCharabaty @ownyourcrohns @crohnsbabble @LivingWithUmeed @vkckiranpullela @TheMaveilousGut @dunung_ruchita 1/ I'm Surakhsha from🇬🇧, co-founder Team @ibdesis. We are proud to lead #PatientExperience on @MondayNightIBD to discuss specific aspects of #SouthAsianIBD experience. We hope to improve care for our community around the 🌍 #MondayNightIBD
@rebelliousgut @MondayNightIBD @southasianIBD @ibdesis @Empoweringpts9 @DCharabaty @ownyourcrohns @crohnsbabble @LivingWithUmeed @vkckiranpullela @TheMaveilousGut @dunung_ruchita 2/ Pre #Crohns dx was a hard fight to get any HCP to listen to me/my mum. The first GPs I saw were #SouthAsian, maybe they had no understanding of #IBD as it wasn't 'common' back then or seen in British Indians or #SouthAsians ... #MondayNightIBD #SouthAsianIBD
@rebelliousgut @MondayNightIBD @southasianIBD @ibdesis @Empoweringpts9 @DCharabaty @ownyourcrohns @crohnsbabble @LivingWithUmeed @vkckiranpullela @TheMaveilousGut @dunung_ruchita 3/ I was fobbed off with indigestion medication, even when I was rapidly losing weight. It wasn't until the family GP (who wasn’t SA) saw me + immediately referred me to the paeds unit at the local hospital as an urgent matter. #MondayNightIBD #SouthAsianIBD
Read 7 tweets
@rebelliousgut @MondayNightIBD @southasianIBD @ibdesis @Empoweringpts9 @DCharabaty @ownyourcrohns @crohnsbabble @vkckiranpullela @TheMaveilousGut @dunung_ruchita Although I had the support of some friends & family, the taboo & lack of knowledge about #IBD meant not many knew how to support me. I found it difficult to educate loved ones & am thankful for more resources that are available now. #MondayNightIBD #SouthAsianIBD (1/ )
@rebelliousgut @MondayNightIBD @southasianIBD @ibdesis @Empoweringpts9 @DCharabaty @ownyourcrohns @crohnsbabble @vkckiranpullela @TheMaveilousGut @dunung_ruchita At the same time, I've also met people who couldn't understand how someone my age (17-23) could have such a #disability. The invisibility of #IBD added to this. As a result, my struggles with #IBD were downplayed, minimized & ignored. #MondayNightIBD #SouthAsianIBD (2/ )
@rebelliousgut @MondayNightIBD @southasianIBD @ibdesis @Empoweringpts9 @DCharabaty @ownyourcrohns @crohnsbabble @vkckiranpullela @TheMaveilousGut @dunung_ruchita Given the stigma around #digestive dx & #disability in #SouthAsian community, I felt like I had to make my condition as invisible as possible. These internalized social norms meant I also downplayed my UC to make others more comfortable. #MondayNightIBD #SouthAsianIBD (3/)
Read 8 tweets
@rebelliousgut @MondayNightIBD @southasianIBD @ibdesis @Empoweringpts9 @DCharabaty @ownyourcrohns @LivingWithUmeed @vkckiranpullela @TheMaveilousGut @dunung_ruchita 1/ I'm Sharan from 🇬🇧, co-founder Team @ibdesis. We are proud to lead #PatientExperience on @mondaynightibd to discuss specific aspects of #SouthAsianIBD experience. We hope to improve care for our community around the 🌍. #MondayNightIBD
@rebelliousgut @MondayNightIBD @southasianIBD @ibdesis @Empoweringpts9 @DCharabaty @ownyourcrohns @LivingWithUmeed @vkckiranpullela @TheMaveilousGut @dunung_ruchita 2/ My initial diagnosis came after months of going back & forth w my GP who was reluctant to refer to a specialist because they were certain that my symptoms couldn't be due to #IBD. In their own words, "#SouthAsians don't get IBD" #MondayNightIBD #SouthAsianIBD
@rebelliousgut @MondayNightIBD @southasianIBD @ibdesis @Empoweringpts9 @DCharabaty @ownyourcrohns @LivingWithUmeed @vkckiranpullela @TheMaveilousGut @dunung_ruchita 3/ This delay led to extreme weight loss and worsening of symptoms to the point where I was unable to get myself out of bed. I was admitted into hospital with my weight down to 28kgs, from 38kgs just months before.
#MondayNightIBD #SouthAsianIBD
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@rebelliousgut @MondayNightIBD @southasianIBD @ibdesis @Empoweringpts9 @DCharabaty @ownyourcrohns @crohnsbabble @LivingWithUmeed @TheMaveilousGut @dunung_ruchita 1/ From onset of Sx, it took >3 yrs to be Dx w #Crohns. Initially, I consulted GPs as they were
easily accessible & family believed that #GI specialists would recommend surgery over 💊 Took
over 10 🥼before I was diagnosed correctly.
#MondayNightIBD #SouthAsianIBD
@rebelliousgut @MondayNightIBD @southasianIBD @ibdesis @Empoweringpts9 @DCharabaty @ownyourcrohns @crohnsbabble @LivingWithUmeed @TheMaveilousGut @dunung_ruchita 2/ Even today, I do not have access to #IBD specialist close home & travel 500 kms for my #IBD care. This is the reality for many #SouthAsian pts who do not have easy access to care #MondayNightIBD #SouthAsianIBD
@rebelliousgut @MondayNightIBD @southasianIBD @ibdesis @Empoweringpts9 @DCharabaty @ownyourcrohns @crohnsbabble @LivingWithUmeed @TheMaveilousGut @dunung_ruchita 3/ For a large part of my #IBD journey, I was on 5ASAs, Azathioprine & steroids. The most painful aspect was #perianal dx which was not controlled by these meds. But unaffordability of biologics meant I relied on steroids for over a year
#MondayNightIBD #SouthAsianIBD
Read 8 tweets
@MondayNightIBD @southasianIBD @ibdesis @Empoweringpts9 @DCharabaty @ownyourcrohns @crohnsbabble @LivingWithUmeed @vkckiranpullela @TheMaveilousGut @dunung_ruchita 📣 #IBD patients & caregivers:

#IBDPoll 1️⃣

📊Thinking abt your IBD needs, what's been the biggest hurdle to your care?
📝 In the replies, elaborate. What’s helped your care?

Please share your #PatientExperience w #MondayNightIBD 👇🏽

👨‍👩‍👧‍👦=Family
👩🏼‍🤝‍👩🏽=Friends
🥼=Specialist
@MondayNightIBD @southasianIBD @ibdesis @Empoweringpts9 @DCharabaty @ownyourcrohns @crohnsbabble @LivingWithUmeed @vkckiranpullela @TheMaveilousGut @dunung_ruchita #MondayNightIBD #PatientExperience
#IBDPoll 2️⃣

🧐Thinking about your culture’s expectations

📊 Have you tried Complementary and Alternative (CAM) Therapies (ex: ayurveda, homeopathy)?

What drove you to try these therapies? Please share your experience.

SE=side effects
@MondayNightIBD @southasianIBD @ibdesis @Empoweringpts9 @DCharabaty @ownyourcrohns @crohnsbabble @LivingWithUmeed @vkckiranpullela @TheMaveilousGut @dunung_ruchita Thank you @MondayNightIBD for shining a spotlight on 🌏 #SouthAsianIBD pt experience!

I'm Madhura from 🇮🇳, co-founder Team @ibdesis. We are proud to lead #PatientExperience on #MondayNightIBD!

We hope to improve care for our community around the 🌍 through @SouthAsianIBD.
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پاکستانی اکثر یہ کہتے پائے جاتے ہیں کہ انہوں نے انگریزوں کیخلاف جنگ آزادی لڑی اور قربانیاں دیں جبکہ دوقومی نظریے اور نظریۂ پاکستان کے بانی سرسید احمد خان نے انگریزوں سے مسلمانوں کی وفاداری پر ۳ جلدوں میں یہ کتاب لکھی

• An Account Of The Loyal

Muhammedans Of India ImageImageImage
اہلحدیثوں کے شیخ الکل میاں نذیر حسین محدث دہلوی تو ملکہ وکٹوریہ سے وفاداری کا حلف اٹھائے ہوئے تھے (بحوالہ : الحیات بعد الممات) اور ۱۹۱۱ میں تمام فرقوں کے مولوی بمع دیوبند ، شبلی نعمانی اور اہلحدیث مولوی محمد حسین بٹالوی نے تاج برطانیہ کے لیئے اللہ میاں سے دعا مانگی اور سرسید 😂👇 ImageImageImageImage
اگر اوپر دیئے حوالے سے تسلی و تشفی نہیں ہورہی ہو تو ضیاء الدین لاہوری صاحب کی تحقیقی تصنیف “ ۱۸۵۷ کے چند اہم کردار “ کا مطالعہ فرمائیں تاکہ طبیعت بالکل صاف ہوجائے

بشکریہ : ریختہ :

rekhta.org/ebooks/atthara… ImageImageImage
Read 23 tweets
TW: police brutality, violence.

it's really disappointing to see @SAHM_UK frame this event as a 'celebration' of the police detached from police violence and failings which impact south asian communities + beyond.

#southasian
"My son died in suspicious circumstances in October 1997 after being racially abused... [we] experienced a litany of police failures, assumptions and stereotyping based on our colour."

ricky's mum sukhdev is now campaigning for a new investigation.

4wardeveruk.org/2021/07/demand…

💜
i'm sad to see such a seemingly uncritical approach which names a police-affiliated organisation as a partner with no alternative voices.

SAHM states it is inspired by Black History Month, making this 'celebratory' event even more concerning in the context of BLM.

😢
Read 7 tweets
Proud Moment!: Business Development Manager 25-year-old #VaidehiDongre from #Michigan crowned #MissIndia #USA 2021; "This One Is For My Aai", dedicates win to her mother; Says 'It #empower #women of #Indian origin':
Beauty pageant held over weekend.
#Thread @JoeBiden @POTUS
Represented #India immigrants living in #UnitedStates as new Miss India USA. India born #MichiganState University #graduate @UMich @michiganstateu. Arshi Lalani from Georgia declared first runner-up. Vaidehi shared, "I want to leave positive lasting impact on my community and...
Focus on women's financial independence and #literacy." Vaidehi graduated in International Studies. Described journey as “whirlwind”. Mira Kasari got third position. "I've always strived to be role model for young girls, celebrate my rich #SouthAsian #heritage and leave lasting
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Announcement from @fordnation sank my heart today. As an ER doctor, person of color and #Scarborough native, I feel defeated 😢. The measures are not going to get wave 3 under control. #BIPOC #ERdoc @SHNcares @torontolife @JustinTrudeau @SCMirror 1/
When I landed as an #immigrant in #Canada, my life started in #Scarborough. My parents (#heros) struggled to find jobs that matched their education. That didn't stop them from working hard / hustling even if it meant 2 jobs at times to keep bills paid and food on the table. 2/
My family lived in an apt building that had mostly racialized/middle-low income families (#affordability). Not much social distancing when large crowds wait for elevators (#EssentialWorkers) or use the shared laundry facilities. This pandemic brings back those vivid memories 3/
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A journalist friend informed me that a major national mental health organization provided a list of “Psychologists available to discuss Anti-Asian Racism and Violence”. It included many people who have mentored me or have been invaluable to @AAPAonline & #AsianAmericanPsychology.
Please follow all of these amazing Asian American Psychologists and their work: @seachellez @drmichifu @gnhall2 @HelenHsuPsyD @RichLeePhD @DrWillMingLiu @drpriscillalui @deraldwingsue @DrSherryCWang & Dr. Jenny Wang (IG: @ asiansformentalhealth)
Two weeks ago, I contacted the organization to let them know that I was concerned that their list included 9 East Asian Americans and 1 Filipina American and that it was not inclusive of the many South Asian and Southeast Asian American psychologists who are doing amazing work.
Read 14 tweets
#Mentalhealth x #minorityhealth are very close to my heart! I serve on the board of @SAMHINorg , a NJ based NPO focused on #SouthAsian mental health

We are looking for dedicated #volunteers (1/n)
with an interest and skills in the following:
- #socialmedia management
-social media content creation
- fundraising

Here’s our Instagram:

instagram.com/samhinorg?igsh…

Here’s our website:

samhin.org

DM me if interested for the application process!
Read 5 tweets
@KamalaHarris will never be “brown enough” for you

...and she doesn’t have to be. A thread (1/10)
Imagine bringing home a Black man named Donald Harris as your boyfriend.
Imagine bringing home a biracial woman named Kamala Harris as your girlfriend.

Let’s not pretend these meetings would go well in many of our families. We can’t just selectively accept Black folks. (2/10)
Knowing our communities, Harris likely experienced some anti-Blackness from other South Asians growing up. Sharing this, if true, could show vulnerability and authenticity. (3/10)
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I'm working on a piece about social justice movements and lessons from Avengers: Endgame/the MCU. This reflection isn't going to be part of this piece but one thing that still makes me sad whenever I think about the MCU is the erasure of South Asian & Middle Eastern #superheroes.
The Middle East does show up... in the form of Stark Industries' weapons of war and as a vehicle for Iron Man's origin story and character development. We see terrorists as well as innocent civilians in caves and war-torn rural villages in the desert.
In Agents of SHIELD, we see a visibly Arab man (wearing a Gulf headdress) & an Indian man (Sunil Bakshi) as Hydra leadership. Later, there is more South Asian #representation for heroes, but even then, this idea of duality or being torn between good & evil is still present.
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Full house at 10 year celebration of @masala_study in #Chicago. Participants shared stories about #hearthealth and what #research participation means. In honor of our participants, here are 10 MASALA study papers that changed how we understand #SouthAsian health. & event pics👇🏾
Understanding the high prevalence of #diabetes in U.S. South Asians compared to four racial/ethnic groups: the MASALA and MESA studies. @alka_kanaya @MichaelJBlaha static1.squarespace.com/static/56bce73…
Association of 10‐Year and Lifetime Predicted Cardiovascular Disease Risk With Subclinical Atherosclerosis in South Asians ahajournals.org/doi/full/10.11… @Mark_Huffman @s_persell @dmljmd
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We came to know of the dire shortage of #SouthAsian marrow donors when our nephew needed a bone marrow transplant to cure his leukemia. He was 7 y/o & while other patients had pages and pages of potential donors, he had none. We learned through #BeTheMatch.... (1/4)
...how easy it was to become a donor. We all got tested, but sadly no one in our extended family was a match for him. With the help of hundreds of folks who organized drives all around the country, we added thousands of new donors to the registry. Sadly, we couldn’t... (2/4)
...save our precious nephew, but we can save @liynaanwar. In fact, the drives we held brought forth countless lifesaving donors, including our cousin who was able to save the life of 9 yr-old girl w/aplastic anemia. (3/4)
Read 4 tweets

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