Discover and read the best of Twitter Threads about #asthma

Most recents (9)

1/ It's all scaremongering isn't it about #brexit and #drugs? Stockpiling, price hikes, and, as @MattHancock warns, dead patients. Well, here's the lowdown and it's not pretty. With or without #softbrexit.
A thread
2/ Patients with long-term conditions such as #diabetes, #asthma or #schizophrenia, #blood pressure, #heart problems or #cancer down to daily medicines for #rashes and skin problems, take for granted that they will be able to get their medicines when they need them.
3/ According the UK's Business, Energy and Industrial Strategy
Committee publications.parliament.uk/pa/cm201719/cm…
73 per cent of pharmaceutical imports in the UK come from the EU. This equates to around 37 million packets of medicines every month from the EU worth £18.3 billion.
Read 19 tweets
I am scheduled for my 3rd surgery since December on Thursday.
Please do me a favor and promise to call your reps and senators and tell them you support and need the #ACA/#Obamacare and they only have your vote if they reject Trump's efforts to kill it.
Here's a thread on why:
1/
Many Americans think the #ACA/#Obamacare is insurance.
It is not.
The #ACA is a law governing insurance companies & forcing them to cover women & people with #PreExistingConditions.
The #ACA also says women cannot be forced to pay more than men for insurance.
#ProtectOurCare
2/
The #ACA/#Obamacare also provides for children 26 and under to be covered under their parents' insurance plans.
The ACA also created the healthcare marketplace, which provides tax subsidies for those unable to pay full-price for health insurance.
#ProtectOurCare
3/
Read 13 tweets
thread

Remarkable @bmj_latest @BMJCaseReports report documenting the extreme lengths a bedbound patient went through to get a diagnosis of #POTS, #MCAS, #SIBO and #tachycardia

read her story here

#MedEd #MedTwitter @MayoClinic
casereports.bmj.com/content/2018/b…
2. After suffering for 16 years, seeing 19 docs with repeated misdiagnosis:

Her cardiologist couldnt diagnose #POTS

Her gastroenterologist couldnt diagnose #SIBO

Her immunologist couldnt diagnose #MCAS

Her neurologist referred her to a #psychiatrist!

casereports.bmj.com/content/2018/b…
3. Patient: the "neurologist was out of ideas and suggested I get a psych evaluation, which I declined"

the patient <referred herself> to @MayoClinic

#SickNotWeak #chronicillness #chronicpain #MedEd #medtwitter

casereports.bmj.com/content/2018/b…
Read 10 tweets
Somebody hire me to write about what it's like to actually live in poverty.

I can write about it from myriad vantage points:

▪As a late middle-aged woman (women 50+ are the poorest segment of US population)
▪As a #lesbian(employment discrimination is huge among lesbians)
1/
▪As a chronically ill person (131M Americans have chronic illnesses from #cancer to #asthma that interfere with employment)
▪As a #disabled person (#disabled are the largest minority group in the US, but are most un- and under-employed)
2/
Every time I pitch poverty as a topic, I get an eye-roll.

Poverty was barely mentioned in 2016 Hillary raised it a few times; Sanders talked about "the ghetto" and Trump said he would cut taxes, but he actually cut entitlements.

Yet 1 in 7 Americans lives in #poverty.
3/
Read 11 tweets
1/I've said many times that I am poor because I am unemployed (except for my writing) and I am unemployed because I am disabled.

I am now officially rejecting that shit.

I am still disabled. I still am not employed.

#Disability #ChronicIllness #poverty
2/But the reason I am unemployed is because society has deemed me disposable. This isn't on me.

#disabled #DisabledPeopleMatter #PplWDisabilitiesMATTER
3/It's because society has decided the WANTS of the abled (specifically in my case, to use fragrance and decorate with balloons) are more important than my survival. This isn't on me.

#BanBalloonsInstead #fragrance #MCS #MCAS #allergy #asthma
Read 18 tweets
I have been battling a new health crisis since my surgery was postponed June 15.

There is no way to adequately articulate--even as a writer--the breadth of hardship inflicted on sick Americans by the Trump presidency & Trump-led #GOP, like lame-duck @SpeakerRyan.
#healthcare
1/
The @CDCgov cites 133M as the number of chronically-ill Americans who have #cancer, like I do, or another illness that impedes their daily lives.

The majority of that 40% of the US population still have to work despite often disabling illness because we cannot afford not to.
2/
I've been writing about #healthcare in America since I was a cub reporter and put on a small story in the mid-80s that turned into a much bigger story: #AIDS.

When you're in your 20s writing about other 20somethings dying, it changes you.

Then I got #breastcancer at 26.
3/
Read 19 tweets
I had another life-threatening heart/lung episode today.
I'm not sure how much of it had to do with my cutting my heart meds back to once a day while appealing the increased price by my health insurance from $120 for 60 pills to $1k for 60 pills.
We had to call 9/11.
Scary.
1/
I couldn't afford to go to the hospital--when you call 9/11 the city charges you $1,200 for the trip to nearest hospital.
They only accept cash.
The EMTs checked me out, told me to take the heart meds the way they were prescribed, established I wasn't in VFib, just SVT AFib.
2/
So all day, instead of doing work that needs to be done, I have been trying to get my heart rate under 140, which given my lung meds increase my heart rate, has been more work: breathing exercises my PT taught me, single nostril breathing @HillaryClinton taught me (try it).
3/
Read 19 tweets
Hours of my work day and my very limited energy have been spent fighting with my health insurance company about my coverage.

As of January, my freaking premium now costs $1,978.10 PER MONTH.

This is what Trump did to sick people & everyone applauded last night at the #SOTU
1/
I have no idea who has this kind of money but it's more than I make.

The sicker you are, the more expensive your plan.And there's no option because the #GOP allowed health insurance companies (who just got a huge tax cut) to charge whatever they want for coverage.
2/
So The Wife, who is the same age as I am and who has the exact same plan, pays $239.00 a month for hers.

This is America right now for sick people. I would qualify for #Medicaid expansion if I lived in a different state, but I do not.

This is madness. Just madness.

3/
Read 12 tweets
If you are interested in #AirPollution and health scroll down this thread #AirQuality #BreatheLife
#AirPollution is considered the most important environmental risk causing 1 in 8 premature deaths. That counts 6.5 million per year.
At least 80% of the world population is exposed to dangerous levels of air pollution. Lack of #AirQuality data could cause underestimations
Read 6 tweets

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